Can you find the thread that I started that says why you picked this screen name and add your story? Or did you already?
Hmm. Had Gamma in March. Ear pain and infections are off the charts. Neuro referred me to ear specialist. This was very interesting. Thank you. This journey can really wrap around your soul and squeeze hard. Going to regroup and push back really hard!!!
Hope you’re still having good days…even with the stairs.
I’d like to know about that car!
Thanks Bellalarke. How are you doing BTW?
I am doing - ok today. Still dizzy and have an awful headache.
My car is getting an engine rebuild. Bored out, new pistons, complete head overhaul, new water pump, timing belt, and timing set.
Its being delayed by the pistons. They are being made in the States, and are taking forever to get finished.
Once that gets here we are looking at a day to finish rebuild, and a day to finish the install.
I am going crazy with out her.
Thanks for asking.
I am having some good days mostly thanks to first grandchild arriving a month ago (I am so in baby- love!) and a fantastic stretch of warm dry sunny weather and constant pressure system for a month. And I will be seeng neurosurgeon on Aug. 6th so that helps knowing "something"is coming up, rather than that infernal waiting. Thanks for asking.
And thanks for telling me about the car getting its rebuild but I’m not sure from the photo what make it is. It’s really wonderful to have that excitement, something to look forward to.
Did you have any trouble driving, vibration- wise/ pain- wise, before the surgery?
Peace and Happiness
Bellalarke
My car is a 1988 Super Charged MR2.
She is my baby. Not the fastest car in the world, but with it being a Mid Engine Rear Wheel Drive car, its a drivers delight.
Funny thing about vibrations. I find they helped my ear pain. When I put my winters on and drove 115 on the highway, it was great.
Although today is not the greatest, it is better than having the GN pain.
I remember the bad days, the seriously planning out suicide days.
This is nothing compared to those days.
I keep remembering that these days will pass. I am recovering, and I will soon see it was all worth it.
I cannot wait to start getting off of these blasted drugs. My DR from the pain clinic is gone until Sept, and I want to do this as soon as I am stable. I am going in to talk to my family DR to see what she can do.
I am worried as I have been on some of these for quite a long time, and I have read that the withdrawal is brutal.
Anyhow that is another story - as they say.
I hope you all have a good day
Smash
Nice!
I’m okay going fast on a smooth road, but slow and bumpy is brutal. Trains, buses and subway bad too. Good thing I don’t need to drive often…
Hope you get out in your MR2 soon-
smashagnome said:
Nice car smash!
Thanks!
Look at this. I am still not puking.
I have a tremendous headache and the world is spinning around me most of the time, but at least I am not puking.
The days are incredibly boring for me. Anyone who is considering this surgery should remember the recovery and get a bunch of things to keep yourself busy. I figured I could just do the things I like! You know, kick back and play video games, read a book, surf the net. At first that was impossible. Now I can read for periods, still afraid to try the video games. The games made me get the spins and I don't need any more of that right now.
Daytime tv is for the birds. I have a really good cable package, and yet everything during the day is either repeats, or something I would never watch.
Ah well. here is hoping you all have a great day. I am slowly getting over the surgery. and once I am - watch out!
Smash
I woke up this morning feeling like a million bucks.
I got up - had my coffee, and still I feel great!
The worst seems to be over - and I hope things are back to normal.
I was playing some video games last night, and just got off playing Age of Wushu.
I cannot believe that I feel so good today. It just goes to show you that it is true - These times too shall pass.
Smash
Hey Smash
That’s great to hear. The worst is over - the good words everyone wants to see and one day say too. It takes courage to have the surgery, and a lot of patience, I guess, for the recovery. Happy gaming-
Bellalarke
so happy for you ....praying for a speedy recovery
Thanks for all the support.
Another happy day. My head is really sore around the metal plate - that could be the way I was sleeping. I have a headache, and there is a lot of pressure today.
My wife had the flu and both of my kids have had it, so far I have been able to avoid getting it. More puking is the last thing I need ;-)
I hope everyone is able to have pain free days.
Smash
Hope you can avoid that flu! Tough when wife and kids are sick. Let us know how it goes with the healing around the metal plate, and if sleeping in a different position helps headache.
Thanks again!
Another fantastic day!
I am still learning what I can and cannot do. I am trying to help out around the house with the kids (3,and 5)
I have to remember not to get angry, as every time my blood pressure rises my head throbs.
Walking the stairs is getting better. So is turning my neck. I would say for the most part I am doing well.
I still take things slow, and get plenty of rest. I have started to reduce my Carbamazepine by 600 mg per day. Next week I will reduce it another 600 mg.
Next I have to decide which med to reduce. So many to choose from lol.
Here is hoping you all have a great day.
Smash
Good to hear getting up the stairs is better.
Wow, two little kids. A handful even if you haven’t just had cranial surgery! I like the way you understand how to manage your anger. A benefit of surgery- and the years of suffering. It’s a good take- away strategy.
Having a great day here. Managed to get up and down a ladder a dozen times and trim some of the wisteria that is strangling my house. Very satisfying. And I knocked off before I triggered myself. I’ve had to learn a lot of lesson too: like don’t go at chores like a maniac! I’ve had to learn that just because I’m okay for five minutes it doesn’t mean I’ll be fine for ten…
Enjoy those little ones-
Bellalarke
I've had to learn that just because I'm okay for five minutes it doesn't mean I'll be fine for ten...
That is how I feel. It's something that I have been trying to teach myself (and my family) for a long time now.
Smash
Last night my wife noticed a fairly large bump just behind my MVD. It is painful to touch, and squishy like it was fluid.
Against my wishes we went back to the hospital today. Two hours later the doctor looked at it and said it could be a localized infection. She said she wasn't worried about it. Just get lots of rest, and don't strain myself.
I am scheduled to go see my NS in three days, so unless it really becomes an issue I will wait until then.
I've read up and it seems common for retromastoid bulges are common after MVD.
Smash