I had a typical bout of TN two years ago. It lasted about 6 weeks & was awful and scary.
This past Christmas I had a typical type cold and sore throat & it settled in my left ear. The same side as where I had a history of TN. I was told on & off that I had an infection and now I truly do not. I am feeling some TN symptoms as last time however, the feeling of constant pain and burning in and on my ear was not a symptom two years ago. I thought I would put this out there and see of anyone might be able to relate or be able to Help in any way.
It may well be Geniculate Neuralgia which unfortunately is part and parcel of TN for some of us. There is a subgroup for this which you can find under GROUPS on the black header, and I invite you to join us. I am bi, Type I on the right and Type II on the left, it is so painful. Feels like someone is turning a sharpened corkscrew in my ear at times, urghhhhhh.
I had bad ear ache. It would ache deep inside for weeks. I would have a feeling of hot liquid running out of my ear. I on occasion get a feeling as if a hot needle has been jabbed deep in my ear. About 15 years beforfe it became full blown TN type 2 it was just the ear pain. I would get bad earaches without a cold. I would eventually go to the Dr for the ear ache and be told there was no sign of infection and slink out of there embarrassed. It wasn't until I saw a neuro Dr that the ear pain was recognized as part of the TN pain. I had MVD. The dr found compression on 8th nerve as well as the fifth nerve. The surgery to fix the ear pain left me deaf in that ear. The loss of hearing is better than the pain I had prior to surgery.
Wow..Thank you Both for the Reply! I have felt very confused and scared about this. I was actually scheduled here in Detroit for MVD twice in the last Month. Both times the Dr. asked to look further and had me do a angiogram then now He is looking at all of my MRI's. I have never attempted meds for this because of past history with difficulty with the types of medication that they use for this. I realize the surgery is a BIG deal, however If it works it will be well worth it. There are a couple of Surgeons here in Michigan. The one I saw was at the DMC in Detroit. I am willing to travel, so I may explore what others are saying about good surgeons. Thanks again. It helps to have people who DO understand what I am going through.
You are in the same city as Dr. Kenneth Casey our expert on TN. He is easy to get into for an appointment and will give you all the options for your pain and explain them in detail so you understand. My first appt with him lasted over an hour. I e-mailed him for the first time at 6:30 on a Saturday night stating I just learned I had TN, I hadn't been able to get an appointment with the neurologist my GP recommend at MSU for 3 months, and I was filled with despair. He replied to me within 30 minutes saying he could help and to contact his office that Monday. I was in to see him the following Monday. He was the first person from the medical field that understood my pain. It wasn't menopause. It was pain. I live North of the capital and make the two hour drive to see him. I don't trust anyone else.
Dr. Kenneth Casey? I think I did see a something about Him along the way a couple years ago, when I had my last attack. Thank You very much!!! It is always good to get advice or direction:) Each day, I look for something that will bring forth Hope and a direction that will help and hopefully free me from this. I will call His office and see if I can in there soon. I will keep ya posted! Have a wonderful day! ~ Julie
You are in the same city as Dr. Kenneth Casey our expert on TN. He is easy to get into for an appointment and will give you all the options for your pain and explain them in detail so you understand. My first appt with him lasted over an hour. I e-mailed him for the first time at 6:30 on a Saturday night stating I just learned I had TN, I hadn't been able to get an appointment with the neurologist my GP recommend at MSU for 3 months, and I was filled with despair. He replied to me within 30 minutes saying he could help and to contact his office that Monday. I was in to see him the following Monday. He was the first person from the medical field that understood my pain. It wasn't menopause. It was pain. I live North of the capital and make the two hour drive to see him. I don't trust anyone else.
yes, both of them. June 2010 was the first one. Ear pain in no longer an everyday issue. If I am having a bad day then it will kick in. I had a repeat in 2011 due to the teeth pain. He replaced the pads with thicker ones and padded more area along the nerve. When I first saw him May of 2010 pain was a 10 every day. Today after two surgeries I rarely go to a 10, if I do it's due to stress and weather. Even losing my hearing which was not expected I would have the surgery again. I can't take any of the drugs due to allergies. He prescribes me a cream I rub on my face which lets me function, drive and have a more normal life. It's worth an office visit just to see what your options are. It's the first time I have had a Dr that acts like a friend. his office 734-642-2742 e-mail kenneth.casey@oakwood.org
Jewels said:
Did Dr. Casey do your MVD?
Shinemoon said:
You are in the same city as Dr. Kenneth Casey our expert on TN. He is easy to get into for an appointment and will give you all the options for your pain and explain them in detail so you understand. My first appt with him lasted over an hour. I e-mailed him for the first time at 6:30 on a Saturday night stating I just learned I had TN, I hadn't been able to get an appointment with the neurologist my GP recommend at MSU for 3 months, and I was filled with despair. He replied to me within 30 minutes saying he could help and to contact his office that Monday. I was in to see him the following Monday. He was the first person from the medical field that understood my pain. It wasn't menopause. It was pain. I live North of the capital and make the two hour drive to see him. I don't trust anyone else.
Hi Jewels
I’ve had TN2 for over three years that started with deep piercing ear pain. Got the ear infection run around for quite some time.
This video http://www.livingwithtn.org/video/ask-the-doctor-series-with-ken
Might give you some answers. It’s long and technical but worthwhile and it will help to know what you are dealing with.
B
Has anyone seen an otologist? And has this assisted Ina diagnosis? I’m seeing in otologist in a few weeks because of continuous your pain and pressure . I was curious if anybody else had seen an otologist and if it helps with the diagnosis.
I have seen Several Ear nose & throat Dr.s because my TN symptoms started after a cold that caused me to get fluid in my ear. I was told I had an infection, then bulging ear drum. Then the pain continued after the infection was gone and still hurts terribly:( This all started for me at Christmas. I hope you see a really good Otologist. It helps when these specialist are familiar with TN and also other types of issues that can also cause referred pain. I understand how frustrating it can be! Good Luck:) Keep me posted. Jewel
Janice said:
Has anyone seen an otologist? And has this assisted Ina diagnosis? I'm seeing in otologist in a few weeks because of continuous your pain and pressure . I was curious if anybody else had seen an otologist and if it helps with the diagnosis.