I have a neurologist who just seems to know enough to diagnois gpn and knows what drugs to put me on. I’d like to find someone with more understanding. But I’m thinking this may be difficult, can I ask before the appointment if they have experience with gpn so I don’t waste time and money. I’m close to mayo in MN but hear its hard to get in. Any advise on how to go about this would be great. Thanks
Hi Christina! I’m from Jackson, MN–south of you 
I’m in your boat totally! I’m going to friend you so we can discuss more about the Mayo thing if you want. I’m looking for a neurologist that gets this thing as well. I already got a letter from Mayo declining my request for a visit. Ugh.