Dealing with unseen illnesses

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1

Lately I don't feel like myself. In September I was dagnosed with Trigeminal Neuralgia. Today my symptoms vary like the weather. My ears and jaw are sore today like Ive chewed bubblegum too long. My head is slightly sore but not piercing like it was in September. My feet and arms go numb sometimes. Ive been seeing a chiropractor the last 3 weeks and it helps for a while.

My aunt (by marriage) has Trigeminal Neuralgia and Anestesia Delarosa. I know she deals with alot of pain daily. My sister and I were talking about the pain my aunt and I deal with. My sister totally dismissed my pain as no big deal compared to my aunt. Its hard dealing with pain when people can't actually see something wrong with you.

I also have Polycystic Kidney Disease (PKD). Wont go into that one. At least not now.

My husband and I have so many questions and not even sure where to start. I woke up with this one day so Id like to wake up with it gone some day. The doctor said it was temporary but its still here. If this is permanent how will I deal with these feeling and symptoms? Feels so overwhelming now. Too many questions and not enough answers.

Christy

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I hope you find answers soon. Have you looked at the face pain infor tab. There is much available there.

It's hard for people who don't have this to understand what they cannot see. We are here and we understand. So you can always blog here!! I had a bout of severe depression when my intense pain came back after three years from GKRS procedure. My doctor put me on a different anti-depressant and it is now controlling my pain as well. I am fortunate. I hope you can find relief too!!

Sincerely, Min

Best wishes for you!!

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I know how hard all of that is. I haven't felt like myself in a long time, but I'm slowly realizing that I'm turning into someone new. Some good, some bad, just have to get to know myself again.

It's terrible that your aunt suffers both TN and AD. However, she's probably got a lot of information/experience she could share with you.

I know first hard how overwhelming this can be, so stay strong and know you're not alone, others out there do understand.