Current Update

Sometimes visiting a doctor is like riding a Merry-Go-Round...There are some ups and downs, but in the end I just kind of circle back around to original ideas. I have been switched from Keppra 500mg twice daily to Keppra 750mg extended release, though due to its strength I had to wait for authorization and now for it to be ordered to the pharmacy. I'm going on a week without the new medication and my surgeon wanted me to be on it by this past Monday. Yeah, that's working out real well. Anyway, I will also be visiting with a Pain Management surgeon in December to attempt a V1 nerve block directly to my right temple. If these two 'ideas' end up not working, then I will be going in for my 2nd MVD surgery in June of '13 with two neurosurgeons instead of just the one. I really don't care what they do - I just want to be free of this hell.

I attempted to work out recently after avoiding due to severe pain to the V1 nerve when my heart rate rises, yet just as I predicted, mid-way through it felt like someone shot me in the head. That was Monday and today is Thursday and it still feels like a bullet is there or someone is scraping the nerve with a razor. It's horrible and unfair, even to the kids I teach because I feel limited and the pain puts me in a bad mood that I can't seem to crawl out of.

I'm tired of it all. I'm near my edge and I just want to give up. Maybe this isn't a battle I can't win...

Awww Katie, I’m so sorry, sorry that any of us have to not only feel this horrendous pain, but sorry that it can bring us to our knees and have us question our ability to back away from the edge.
I really do understand.
But I DO know we can win this battle, it may bring us to our knees at times but there is strength in numbers, strength in coming here and feeling safe to vent, cry, scream. Knowing there are people who suffer just like me, and are putting one foot in front of the other, knowing I am supported by people here who really truly understand this struggle makes a difference.
I read the successful stories, and I have hope.
I think that’s key Katie, finding HOPE.
We may lose sight of it, I know I have, but coming here helps me find it again.
I’m thinking of you and sending some positive vibes your way…hope you feel some relief really,really soon! (((( hugs )))) Mimi