Does anyone else have like a weird crunching in the back of their head/face? It doesn’t happen all the time but when it does, it happens for like 2 days straight. Its like a snap crackle pop type thing and I’m not even sure what is cracking. . .and if anything is actually wrong. Maybe its “all in my head” lol jk. And its super creepy and is the weirdest feeling. Just thought I’d throw it out there.
I get that too!
Yes! N it’s so loud to me but no one else can hear it!!! It freaks me out. I don’t like the way it feels =/ mine just started a few days ago. Have either of you mentioned it to your neuro or dr?
I have experienced the same thing, mine occurs during major flare ups.
I don't get that creepy crunching on a normal basis but I DID get it once on the very same side that I normally get my ON attacks now. It happened when I was having my pins screwed into my skull for my bilateral Gamma Knife Radiosurgery (GKR) on 12/28/2010. It made this horrible loud crunching noise. It was so loud that when it happened I nervously laughed and asked "What was that?" to which my neurosurgeon replied "I don't know." I said "I hope that doesn't happen again". He replied "I hope not too". It was approximately 8-9 months later that one day I suddenly felt like I was kicked in the base of my skull and went back up and over my right ear, then traveled to the crown of my head and up to my eyes. It began happening more and more frequent. I had read that people who had GKR's could experience brain swelling for up to 18 months with a peak at approximately 9 months. I was due to see my neurologist about this time so I waited the next week to talk to him. I was not overly concerned. I honestly thought that was the issue. When I went to him I told him what had happened. He did a few simple tests with me as I sat there. He told me that was not what was going on, but that he thought I had Occipital Neuralgia. You would have thought with already suffering with bilateral ATN and bilateral TN for 23 years at that point, that I would have at least heard of ON...but I had not. I was actually floored when he mentioned it to me. It was like a cruel joke. All I could think was "You mean to tell me I have suffered with this hell for all this time and now you're throwing ANOTHER neuralgia in on top if it? Is this a #*!$&%@ joke?". My heart sank. I know I may sound like a drama queen for saying this but I really did feel like a bit of me died. I just could not go through MORE of this.
The thing that agitates me the most is when I read things such as the above description of Occipital Neuralgia. That is such a misrepresentation of what Occipital Neuralgia REALLY is. I have yet to meet ANYONE who has suffered with ON who has had a little "heat therapy", taken some meds, etc. and their lives go back to normal. They make it sound as if they had a sprained ankle or something that with a little "TLC", is easily controlled. I don't know about most of you, but my Occipital Neuralgia has been just as bad...if not worse than my bilateral Atypical Trigeminal Neuralgia or my bilateral Trigeminal Neuralgia. IT IS A LIVING HELL...AND IT SHOWS NO SIGNS OF LETTING UP. I have had several nerve blocks, followed therapies to a "T", am good about taking my meds and keep up with my doctors as to whether there needs to be a med change and properly ween off if needed rather than go off cold turkey, trust my neurologist, pain management doctor, family doctor, neurosurgeon for my spine, neurosurgeon for my brain, and my pain management doctor. I am good about keeping everyone on the same page. I really do try to do the right things...to no avail. After 26 years of living with neuralgias...lets just face it...no matter what you do...you're not going to win. I know that sounds pessimistic but it is realistic. Sorry to sound like the "Debbie Downer".
After getting nerve blocks done and having what I call sounds like Rice Krispy’s. my doctor said its your muscle fibers. When your muscles get so tense and you move a certain way you will feel a crunchy sound. It’s nothing to really worry about, but again it’s your muscle fibers from being so tense from the chronic pain.
I got the crunching after my first nerve block. If I put any pressure on the area where it was done I could hear the crunching. It was awful.