Neurologist suggest Botox for reducing migraine symptoms. Any thoughts? Anyone experience this?
Did Doctor’s suggested any surgery. Except if you have MS. It is worth trying it. I had one MVD in Toronto for GPN.It worked only for 4 months. Came back again. It is hard dealing with it. Now my neurosurgeon is suggesting one more shot. And I agreed. I am having it on October or November. Can’t live with it. It makes you disabled.
I have GPN bilateral. Surgery was mentioned as an option but not one i am interested in exploring at this time. It scares the hell out of myself and my husband. I am on topamax 200 twice daily as a preventative although it differs the pain and heat sensation it isn’t enough and it is the maximum dosage only uses for seizure patients. Tried other BP meds like propranol but they made me too weak. Neurologist suggest Botox at last visit to reduce 7 attacks per month. I get my migraine in the back of my head at the base of my neck and the gpn at the side above the ear and behind my eyes.
Hello
I had a Botox treatment for my headache (entire left side) and it did nothing … no positive nor negative effects.
Just try the treatment, there is nothing much that can go wrong.
Either it helps or not, try it.
Regards
Mike
Hello
I had my MVD 6 weeks ago and my pain at least doubled. I will go for a Rhizotomy next time.
MVD does not help every patient.
Regards
Mike
md said:
Did Doctor's suggested any surgery. Except if you have MS. It is worth trying it. I had one MVD in Toronto for GPN.It worked only for 4 months. Came back again. It is hard dealing with it. Now my neurosurgeon is suggesting one more shot. And I agreed. I am having it on October or November. Can't live with it. It makes you disabled.
Thanks Mike. I think I might try the Botox. Still contimplating it. What is Rizotomy? I have never heard of it. Is it less invasive than mvd?
Hi Foxy
Yes just try the botox. depending on how much the doctor uses you might fell a bit “down” for 2 weeks, but that’s it.
A rhizotomy is to cut of the nerve of (at the nerve root). I heared the terms denervation or sectioning for the same surgery.
Basically the surgeon cuts of the Glossopharyngeal nerve and then ONLY THE SENSORY FIBERS of the Vagus nerve.
Both nerves should be treated since our condition is better described as a VagoGlossopharyngeal neuralgia. Both nerves have a close relation. They ar the Vagus group.
by
Mike
I found Topimax useful when used in conjunction with amatryptaline, low doses. May be worth a try?
I am on the maximum dosage of topamax now. 200 twice daily and need more relief. I am diabetic with history of heart disease so don’t feel well about taking amatryptaline .
update on my botox treatment from June 3rd... That week I had 3 episodes of GPN / migraines since then I haven't had an episode yet!
I had botox and I'm on Naltrexone...both have been a miracle for me. The Botox works! It is so worth getting them for nerve pain and the migraines. I was having 2 migraines a week. I got Botox in April and I have maybe had 3 migraines. I couldn't believe how well it worked. The Naltrexone is compounded to a low dose of 4.5 mg, you should try that as well. I see a Neuro pain specialist and he is great.
I tried botox for migraines (not GPN). The first treatment worked well and I had a significant reduction in the number of migraines. But the second treatment didn't have any positive effects so I didn't try it a third time. This was a couple of years ago when in the US it was still not covered by insurance (although now it is). After trying many preventative treatments I finally found relief with biofeedback. Reduced the frequency from 10-12 a month to about 4 per month.
Mike,
Check this article out on two case studies VGPN surgical interventions. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4485693/
Rachel said:
I tried botox for migraines (not GPN). The first treatment worked well and I had a significant reduction in the number of migraines. But the second treatment didn't have any positive effects so I didn't try it a third time. This was a couple of years ago when in the US it was still not covered by insurance (although now it is). After trying many preventative treatments I finally found relief with biofeedback. Reduced the frequency from 10-12 a month to about 4 per month.
Rachel What is Biofeedback????
Amanda
Hi Amanda,
I'll write more later about my specific experience but I wanted to get back to you quickly. In the meantime here is a good general explanation.
https://umm.edu/health/medical/altmed/treatment/biofeedback
The person I worked with was in Bethesda, Maryland and her name was Emily Perlman. She was outstanding. It took about 12 sessions with her but lots of practice with the breathing and posture exercises outside sessions. This is a link to the practice where Ms. Perlman works.
very interesting