Robin Lawlor, How were you diagnosed with herpes? what were your symptoms? what kind of examination confrim it? treatment for it?
Robin Lawlor said:
meto as far as teeth and root canals then they found the herpatic lesion.....after root canal and extractions. my neuro (after that) went crazy but i did not know. teeth ached and vibrated. could not touch or brush.
Robin Lawlor said:
SAME SAME SAME......THEN AFTER ALL SAID AND DONE (YRS AGO) 1 YR LATER A HERPATIC LESION SEEN/FOUND IN MY EAR, DEEP INSIDE. THAT WAS CAUSE OF ALL THE VARIETIES OF PAIN LEAVING ME W/ POST HERPATIC NEURALGIA EVENTUALLY ADDING AND = TN NOW.
tkal said:
I thought a lot my pain was due to teeth but it was eventually the TN. The TN feels like a toothache magnified 10 times, doubt this helps you but I have had many root canals and surgery on my teeth before being diagnosed.
my fellow friends I ran into a story in another site - in the end she cured
10 years ago i went to the dentist for a porcelain veneer on my front (chipped) tooth. i was getting married and wanted it to look good. fast forward - they did not do a porcelain veneer rather a crown. i got an infection from this dental office - screaming in pain - hot, red, out of control. they did a root canal - then redid it and left it open through my honeymoon. on way home from honeymoon i began vomiting -- i stopped seeing this dentist (he was my dentist for 18 years and was so outraged that he could not figure out what was wrong he was screaming and cursing at me) ... now i went to another endodontist who redid the root canal (it was never finished!) and he said if this doesn't work you will go to the oral surgeon across the street for an apicoectomy. that's where i ended up. when i woke from the apicoectomey surgery i could not feel the left side of my face but it also came with intense burning pain. they had severed the trigeminal nerve - only i did not know that at the time. i then had them pull that tooth and i had 24 hours of no pain and remember thinking aaahh, this is it. but then the pain came back with a vengeance. after 45 days of them treating it as a tooth that did not clot i left there office. i was now pregnant (from the honeymoon!) and ended up at my ob/gyn's office and passed out. they rushed me and admitted me to the hospital. nobody could find anything wrong all telling me it will heal. i could not eat, sleep and the pain was unbearable. after 4 months of this i finally pulled the youngest neurologist to my bed - begged him to tell me what he would do, he gave me the name of a top oral surgeon at U of Penn. I went to see him and within 5 minutes he told me i had osteomyelitis of the maxilla (jaw bone infection, upper). i had 4 debridement surgeries, removed some jawbone and some of the inside of my face that was dead. i had a PICC line placed and then another. it was 9 months that i had this - i also did HBO (hyperbaric oxygen treatment) 42 dives to speed up the healing. i was on umpteen medications. i lost the baby. i was in excruciating pain and it was not getting better. fast forward again - i lived with the pain for years and then it started to get somewhat better. in 2007 i went in and had my upper teeth reconstructed. i did a lot of research on who should do this procedure. no luck - i ended up in more pain and now i had RSD on the OTHER side of my face too -- no, it did not spread - it was a new injury to a new tooth. i was in HELL! i could not wash my face, brush my teeth, eat solid food or smile. nothing. this was now 2007. I had a stimulator implanted in my face - then had it removed. i continued on umpteen medications until my body refused them all from side effects. i always carried hope with me - ALWAYS that there would one day be a cure and i would be pain free. i suffered depression and anxiety through it all too. pure HELL. in the meantime i was told i could have a stimulator placed in my brain... um, no thank you. my brain was not going to be touched with scalpels and such. i found a neurologist using botox off label (at that time) for trigeminal neuropathy (my diagnosis) and he basically froze every muscle in my face, head and neck. it helped a lot. BUT i had a drooping lip and the pressure from that on my teeth was awful. i had to stop them. i continued to suffer. (i had already seen lots of pain management specialists and nobody said RSD - i just got bandaids and pain meds, etc.). i went to another pain management doc and he did an spheno ganglion block. omg!, i was in worse pain after and begged not to ever have that done again. we discussed ketamine. he said it does not work too well - he shared all of his literature and articles on it and i saw the % where it worked and the frequency you had to go back. i also read this forum and others and knew i was not yet ready for it. he started doing full body lidocaine infusions. meantime the RSD was spreading. i had back pain, neck pain and arm pain - i just felt like crap all of the time, it was so hard to stay positive and keep the hope. i had lidocaine infusions every 3 weeks for months on end. they did help but only temporarily. it was at this time i was at my wits end and hope was more than beginning to fade. i could not live this way any longer. --- i always made it a point to write my story on as many forums as i could find in hopes one day i would get contacted with a miracle. that miracle came the night i was going to end my life. I got an private message from someone on this board giving me the name of the doctor that took her pain away and got her out of a wheelchair and walking again. All this after 2 1/2 years of her being in pain and living with full body RSD. the message simply said what she had, prayers for me and to keep an open mind - with that she gave me a phone number. i went from omg a cure - to omg, a scam. i was so desperate and did not want to go to germany for a coma induced ketamine infusion i decided to hop on a plane and headed for Miami, Florida instead - i was promised that if i could believe, and conceive i would receive the gift of being healed. I am HEALED. i do not have that hellacious pain any longer. I went in March, 2012 and have been pain free since. NO pain in my face! i can eat, laugh, wash my face and hair, play with my son - let the wind brush my face. it is GLORIOUS! I truly believed this man would heal me and he did. It sounds crazy because medical doctors could not cure me. But it also makes perfect sense. my nervous system was completely out of whack - and it needed to be fixed. where the medical community gives you a label and then offers you (what they know) the 4 things to try and hey, by the way there is no cure for you and you will most likely end up in a wheelchair - was enough. i refused to believe my pain psychologist who told me i had to learn to live within my limitations or i would always be depressed. i told him that was taking away all of my hope i could not do that. there had to be a way to get into my brain and turn off the damn PAIN ON SIGNAL. I went to see Dr. Nick ( he is not a medical doctor ) he is a brain programming system specialist and healer. I trusted him fully and believed i would get better. If you have an open mind he can heal you too. I know it sounds crazy, but it it's the g-d's honest truth. it is NOT hypnosis and it is NOT your fault you are in pain - he uses hypnosis to quiet the brain and then he does his brain reprogramming - and it is amazing. it is not frightening. there are no needles, no scalpels, no medications. best part? IT WORKS! i have seen 5 people with RSD walk again and get cured from him - 2 of which i spoke to before they went to see him. I also saw my uncle who had failed back syndrome, who was almost crippled, in bed for 16 years get up and WALK in 1 hour. 1 HOUR! how could this be? and yet again how glorious!
PLEASE feel free to message me a reply, questions, anything. I am paying it forward. I am cured. RSD is NOT a life sentence and if you believe it you can be cured.