Good Morning all.
Got a call that I wasn't expecting this a.m. After seeing a Gamma Knife specialist 2 weeks ago and hearing from him that "he" has never done GK for Geniculate Neuralgia. He would confer with his colleagues but would suggest going back to the Pain clinic for either meds or some kind of electrical procedure? I have made these appointments but a bit of research has me wondering if I want to undergo such a procedure with multiple procedures linked to it? Sounds like a long route to relief.
Anyway...they called from Mid Michigan to tell me that Dr. Copeland did in fact confer with his colleagues and a Radiation Oncologist would like to meet with me and if the appointment goes well they would proceed with Gamma Knife the following day.
Now, I and my husband had pretty much nixed the idea of GK because of the possible side affects. Now, I am getting back to that hopeful stage again.
In the last 2 weeks I have been in more pain than I have been in the last 2 years. This is because I have had to go off all NSAIDS. I've developed a disease called Lymphocystic Colitis and in the process of trying to find relief and a new handful of medications prescribed I took it upon myself to try not taking the handfuls of ibuprophen I usually take with my Norco to handle the GN pain I am in constantly.
Ridding myself of the Ibu calmed down the colitis big time and now I am not willing to take any more of it because I have been miserable with the colitis for 3 months now. You can imagine!
The Ibuprophen really helped with the break-through pain. Now I have constant pain, all day, at about a nagging 3-4 then within 3 hours of the Norco it breaks through to a 7-8 that I have to deal with while it climbs to 10 and beyond before the 6 hour mark when I can take more Norco. My Neurologist has prescribed 2400 mg of Neurotin along with up to 12 10-325 Norco a day and I have to be really careful not to go over this amount...I do though...often. I also take xanax and flexeril to try to calm down the beat down inside my head. I am also on Tegretol 600mg. My GP suggested Methadone to be added to try to get me some sleep. NOthing seems to work so far except the Norco in massive amounts and my heating pad.
I am a 57 year old Grandmother that lives in a household of 10. I take care of my G-Babes while my daughter, her husband, and my husband work 5,6,and 7 days respectively. Two of my 3 sons live with us also...one (25) to help and he does so, amazingly. The other son, we all take care of since he was the victim of a hit and run accident last Oct. suffering massive leg injuries and a TBI and has a long road ahead of him. There is soo much stress in the house and I feel like my troubles are the least of what all is going on. The accident my son had is really placing a financial burden on the family until the lawyers can get him some money. The driver of the car had no insurance and his license was revoked...he is now in prison. Stress is high, I have no place to go to get away from the stress. I don't go anywhere anyway, save medical appointments. Meds have me walking around like a drunk person, rather embarrassing. I don't know how long this procedure will have me down if I choose to have it. I do my best to carry my weight around here and I hope I can take care of myself with this and not have to have too much care from family involved. Luckily, my husband is on standby for a while and my son Colin will be back from Hawaii in time for this procedure so he can take care of the kids in my stead but I'm still worried sick about leaving family in the lurch to have my problems taken care of. Feel kind of selfish.
Now while writing this I get a call from Mid Michigan and they want to see me tomorrow with the procedure possibly the following day! I guess I'll post this and get to a new set of arrangements huh? I'm sorry to do things this way. I'd appreciate any input on Gamma Knife for Genicular Neuralgia. I do have a heartbeat of sorts mixed up with the ice pick pain and I believe this to be the offending blood vessel. This is why I'm even considering this procedure. I'm okay with hearing loss, not so much on facial paralysis but the face is't involved at all right now so I'm praying that is a big plus on the pros side. Love ya'll for taking the time. Be back in a few hours! <3 Laurel