I am trying to figure out what my triggers are so that I can tell my neurologist when I see her on the 10th. So far these are them : brushing my hair, brushing my teeth, bending# over, the wind on my face, my hair on my face, washing my face, coughing, sneezing, blowing my nose, yawning, having my own rub my face. These are the ones that I have figured out so far. Are there anyones that others have that I should watch out for? Not that we all have the same ones but I would like to keep an eye out for any thing that might cause me to trigger a major attack. I am contantly in some sort of pain.
I was wondering if any one had any ideas as to how to eliviate a little of the pain. I am only on Tylenol #3 for pain and only at bed time. They don't help with the pain but they knock me out for a couple of hours. I am also on 200mg of Tegretol twice a day. I just started on that. It isn't helping at all. Any suggestions would be greatly appreciated.
I have also heard about pain journals. Can anyone tell me more about them, and how I would go about starting one. Thanks for your time. BD
triggers are all very individual to the person suffering. When I was first diagnosed almost seven years ago, mine were pretty much the same ones you have listed. My most recent bout of pain seems to have been triggered by the inside left of my mouth, or it just kicks off on its own. My pain has now settled down, but the most recent bout resulted in two hospital admissions. My medication after being discharged from hospital, which is helping, is 1600mgs tegretol, 1600mgs gabapentin, 5mgs Baclofen and 50mgs Amitriptyline. I seem to be fortunate in that side effects of these drugs on me are minimal. I can't help you with a pain journal, but I keep a blog. You can keep a record of the pain and let off steam from time to time. I've found it really helps me keep a track of things. If you can be bothered, below is a link to my blog. You need to go back to around entry 17/18 for the whole story. It might give you some ideas.
thanks you for you reply Jim, I have a trigger when I eat sometimes, if my food touches the inside of my check area. I do know that triggers are individual, i was asking for advice on things to do to help relieve them a little, I will check out your blog when I am feeling a little better.
Jim Richmond said:
Hi,
triggers are all very individual to the person suffering. When I was first diagnosed almost seven years ago, mine were pretty much the same ones you have listed. My most recent bout of pain seems to have been triggered by the inside left of my mouth, or it just kicks off on its own. My pain has now settled down, but the most recent bout resulted in two hospital admissions. My medication after being discharged from hospital, which is helping, is 1600mgs tegretol, 1600mgs gabapentin, 5mgs Baclofen and 50mgs Amitriptyline. I seem to be fortunate in that side effects of these drugs on me are minimal. I can't help you with a pain journal, but I keep a blog. You can keep a record of the pain and let off steam from time to time. I've found it really helps me keep a track of things. If you can be bothered, below is a link to my blog. You need to go back to around entry 17/18 for the whole story. It might give you some ideas.
