After a few weeks remission, my TN is returning. It is still very mild compared to many of you, but I can certainly sympathize with your pain. Because this condition will worsen, I want to be prepared to seek treatment when it becomes life-changing. The treatments I have read about all have mixed results. Have any of you tried: bee venom; PainShield; or total severing of the trigeminal nerve? With what results?
Thank you. Best wishes.
Frank
Frank,
Mild compared to who's? Pain is pain and on September 4, you said; "I need the company, experience of fellow sufferers. Hope I can be of service, too."
Some of my treatments have had 'mixed results', I wouldn't sever the nerve.
My life-changing (OVERCOMING) has been from treatments, TN changed my life. Pain aside, for the better!
Will you have your procedures, if any, in Mexico?
Take care, bob
Hi Frank,
I would highly recommend that you get the book "Striking Back" - it discusses ALL of the treatment options that are out there, including alternative therapies, and they go into them with great depth. I would agree with Bob - don't cut the nerve! If it were me, I would not swerve too far from the tried and true. However, a friend of mine was investigating snail venom being directly shot into the CSF in your back, which has tested with some success - the only drawback is possible psychosis. Good luck with your search.
Lily
TN has changed my life I see things so much more clearly now. Housework no longer matters the car can stay dirty. When I am pain free I can enjoy my family, the children can make as much mess and noise as they like. Yes my pain can get the better of me, yes I do cry with it. In a strange way I am a better person, I rarely get cross, I have far more patience. My grandchildren love me because I let them play in water I let them paint I let them have toys all over the floor. Life is for living now. The consultant has increased my medication to try to relieve my pain, I would try anything except another MVD, my husband took me to see this new guy at Burton-on-Trent England, he was so nice, I am to have another MRI scan, he wants me off the morphine, he really seemed to care and most important he seemed to know all about TN. He gave me hope that with medication he could stop the pain. That is all I ask. I want to enjoy life, I am retired I have the time, David my husband was great, he explained how I am when I have an attack, I am very interested in bee venom Pain Shield, so if anyone has tried these please tell us about the results.