Hello everyone,
Has anyone had sharp pain on the tips of your fingers, and toes, and could this be just one of those conditions related to the nerve pain in the face?
Thamks, Judy
I sometimes get them too. I haven't been officially diagnosed with TN. I get various TN symptoms though.
Those symptoms could possibly be Ms. I have similar symptoms, but these are to do with my Ms.
Hi Judy,
Yes, recently I've had sharp, stabbing pain on the tips of my toes. I have primary Sjorgren's Syndrome so I attributed the pain to that. It is possible that it could be something we share along with the TN. Do have another dx besides TN?
Take care,
Bels
I got those symptoms with tn. Sort of pins and needles pain?!
Check to see if the pain begins when fingers and toes, tip of your nose or ears are exposed to hot and/or cold. I have Raynaud’s. Some people call it disease or phenomenon. The blood vessels under the skin contract very quickly and the area may change colour.
This can make it difficult with hot drinks and showers but it isn’t so terrible.
Whatever the pain is, make sure to check with your doctor
I haven’t had it in awhile but I too had sharp pain jabs in the tips of my fingers, toes and wrists. Has gone away now. I don’t have MS. Neuro dismissed it. So . . I forgot about it, but it really bothered me for awhile. Started about 3 months after the atypical trigeminal started
I get them in my pinkies a lot, for some odd reason, but haven’t found any remedies yet.
So relieved to hear I’m not the only one getting these stabs/tingles, I also get them in my knees on occassion as well as hands fingers and specific toes! Very weird! Neuro thinks it’s very unlikely to be MS even though my TN has recently spread to both sides of my face - I think he thinks I’m mad actually but he’s still doing an MRI so guess that might give some answers although obviously might not! Anyway just wanted to say I know what you’re all feeling here and sympathise and thank you for making me feel less alone. Take care everyone.
I have burning pain in most of the fatty bits of my body (so that's lots lol), palms of my hands, bottom of my feet, face and more ........
I satisfy all of the criteria for MS except for the dissemination in time.
I get it as well. I have both MS and TN and my Neurologist believes that this pain is related to my MS. I am glad your doctor is doing an MRI. You could have MS without noticeable symptoms or another condition. Some neurologists don’t do a full work up just to make sure something else isn’t hiding behind your TN pain. Good luck!
I believed that after 6 months on the meds I started getting carpal tunnel like pain. My hands felt like there in a frying pain. Some fingers go into spasm. Numb and tingling. Funny though when given steroid into the tendons it all stopped. But for how long. I have terrible case if raynauds and have tn2 for over 2 yrs bilateral.
I also have this. For me it started when I added Topamax to the Tegratol I am taking. The tingling is as side effect of that medication. It has come and gone and tends to be more pronounced early in the morning and late at night.
I had severe pain in my fingers, palms and bottom of my feet after starting Topomax along with Tegretol. Couldn’t even change a channel on the tv remote and walking felt like the pins and needles you get when your feet fall asleep. I went off of it and the pain eventually went away. Don’t know what meds you are on or if they may be the cause. I am taking Tegretol and Lyrica. I wish you all the best.
I have it too. I’m on nortriptyline and gabapentin don’t know which one is causing it. Swollen painful stiff fingers. Numbness and burning at night. Fingers go into spasm and lock like trigger finger but goes straight out. Get steriod injection for pain. What can I do have to take this rotten pills. Oh yeah and my hair is getting so thin. Omg. I’m dying.
Hi, I have wondered this exact same thing! The docs thought sharp pains in fingers and toes as well as face meant strong possibility of MS so sent me to a Specialist in Bristol who thought it was psychosomatic! He also decided the face pain was this too! Can’t say how upsetting and depressed that made me feel! Thank goodness my GP was one of the few who diagnosed straight away and didn’t bat me from pillar to post like so many otherwise without the help of the drugs I don’t know where I’d be! The pain can be immense as I know so many of you on here can relate to! Anyway his one saving grace, this so called specialist was to organise an MRI scan so he can’t have been that sure afterall! Anyway just had it yesterday and blimey it was so hard to sit still when so many of the banging sounds from the machine were just the right pitch to set my TN off, was in agony! Has anyone else found that? Mine sets off not only by touch and wind but sound also. Now thats over I’m wondering whether to come off all the drugs as have often wondered if they’re responsible for other sensations elsewhere other than the face - I’m on Gabapentin and Fluoxetine, I’ve also put on a stone and half gradually since I started taken these despite still being just as active and eating the same! Can’t quite face the pain of coming off the drugs tho so will prob wimp out of stopping today as much as I would like to. What a choice we TN sufferers have! Drugs that mess with our whole bodies or excruciating pain! What a choice! I pray someone somewhere comes up with a better solution for us and fast! I’m at the point now where if they said that surgery would cure me I’d go for it instantly! And I’d have never said that a couple of years ago! Far too scary a prospect back then! Anyway sorry to ramble on so long - it does make you feel better putting thoughts down though doesn’t it and knowing there’s people out there reading this knowing exactly how your feeling helps so much. I’m so grateful to this forum. God bless you all with this TN stay strong and I hope today is a good day!