I just started Topamax 50mg at night to augment by Neurontin and Tripleptal. I feel good about it. I would like to share this and see if others have thoughts. So far it is making making me feel a tad hyper but helping to distract me from my chronic pain which is a very positive thing. BTW, I don’t even label my TN as Type I or 2, it’s just plain chronic TN pain. Everyday is a challenge and if the Topamax continues to help I will be so grateful.
Would love to hear other’s thoughts on this drug.
Christine
Hi
I have been taking Topomax for many years ( 10 perhaps ) in addition to the normal TN drugs
( Nurontin, Endep Epilim palexiea)
It is for headache control ( I get migraines from second hand smoke or msg etc food additives)
The Topomax I feel gives minimal side effects, ( in blokes it reduces the urge to urinate) this I get big time and can tell if I have missed 3 or 4 doses as I ( excuse the language ) need to piss like a race horse
The biggest and to my mind ATM most helpful side effect is lack of appetite
No more binge eating etc.
I stopped putting on weight and if I’m not around others and copying their habits re eating I can stay in the healthy weight range. I would not be if I was not on this drug so happy side effect
Note, I really don’t pay that much attention re weight with Bilateral TN and Ocipital Neralgia so it’s not at the front of my thinking.
The Topomax has helped with headaches and I think it assists with the TN pain as well.
I defiantly do not feel quite as well when I have not filled out a script ( not wise)
Re bad side effects, the hyper feelings for me went away quickly I don’t get those any more ( unfortunately) some mornings it would be good to have a ( very slight ) pick me up, but I will take what I can get.
I hope this helps somewhat.
Christine, I take topomax regularly in high doses. The higher you go the worse the side effects cognatively. You will be searching for words and confuse words with the same letter,ie… exchange hospital for hotel in conversation without even thinking about it. After awhile I noticed it and started correcting myself. It does help a ton with my GPN without feeling dizzy or weak like other meds I have taken. I take Tmax by itself. Good luck, just beware of the cognitive issues and drink plenty of water!! that will protect your kidneys