I have just read all remarks & can associate with them all. I am a 71-year-old female that has suffered with TN since 2001. I've had 2 surgeries & since my MVD, 3/26/14, I am 10 times worse. Dr. said he did even more damage because of 1st surgery (scar tissue). Headaches, ear noise (like a freight train), tube in ear, Dr. won't write RX until eye goes back to normal (I have news for him, don't think it's going to), bit lips & tongue even w/o eating, loosing my hair, terrible rash (also on Tegratol), teeth still hurt (top & bottom), can't feel my spirit sometimes, loss of memory, Dr. says in so much pain I'm extremely depressed (no kidding) from 1 Dr & test to another... So glad for this program!! Lord be with us all & help us cope!
Oh Nancy, I am so sorry you are dealing with this monster too. So glald you have found tthis site. A few years back I thought Iwas going craczy (for real ).I had a mvd in 2006 and it was worse not better also.We are all different that’s for sure!! There sure is alot to read here and it will also lead on to other things. Wishing you the very best.