When I first learned of this site I was on a roller coaster mostly down than up and down. Then there were days of ups and downs I was so depressed from this illness. During this time I needed support from where ever I could get it. I found a few of you that was willing to let me into their circle and talk or should I say vent.
I was very depressed and I thought that there would be no end to the pain I tried massage therapy, deep breathing, acupuncture, essential oils, a scarf around my neck, but what was more effective was support and praying. By the way all helped.
When contacting people on the site some people would not respond or had left the site leaving their computer logged on. I felt shunned or ignored.
I am asking that you please welcome new people or log off if you are leaving your computer. We are in this thing together no one knows the hell like we do. If you see someone trying to reach you don't just log off, because they are not in your circle. Say a simple hello and introduce yourself.
I know it is hard sometimes being positive, due to hurting all the time. My first impression was negative and I hated this site, but found there are not many or any other sites out there. I have had this illness since 1999 I found my papers of my first visit. My onset was 1998 that is a long time people.
I have not given up and will not give up. I refuse to lie down although sometimes this fight gets the best of me. So pledge one for all and all for one. I once heard in the world we live today God for all and one for self please let this be a lie.
I ask everyone to make a pledge to log off the site when not in use and flood the new comer with support, love and information. Help them to navigate the site, because of the pain I could not focus. With us putting our heads together we just may help one another by networking live a little better. We are in different parts of the country and we never know what one part of the country is doing to help treat this horrible illness.
P.S.I am just another one of you trying to live a normal life with such a bad illness.