What I've learned here in 30 months! What have you gotten from this site?

I just went back thru and hit on my discussions that I started, 52…don’t have time to read to 1800 postings to others
LOL

I went back and read loving, caring notes to me, made me tear up…beautiful.

I’ve learned that the human spirit, regardless, struggles to retain hope and good will to others.

I’ve been made to laugh, at those who are laughing at their own alter ego on meds…

I’ve learned that perhaps putting a Hot Pocket on my face…could be nirvana…might write the company and have them market their snacks at TN conferences!

I’ve learned no matter what the second 50 years has in store for me…LOL…
I will find some soul out there who gets it…especially with more correct diagnosis out there.

I’ve learned there are people across the pond who anxiously awaited my next check in after a crisis on my end.

I’ve learned here more than anywhere…to try and cut myself some slack as a mental health professional…no superwoman cape and damn it take my own advice!

Tomorrow…I am joining the humor group here because, even though I might get a small twinge from LOL…it’s worth the endorphins and dopamine!

This little portal has opened up my heart to those I will never see or hear… But our thoughts and hearts replace the eyes and ears.

1 Like

Excellent post Kim!

I have been a member of LwTN almost 2 years.
When I joined my bilateral TN was well managed with tegretol, my left side was entering into its 10th year in remission.
Timing is everything, and becoming a member here opened up a window that let a breeze of fresh air in.

I was no longer alone with TN.

I had finally found a place where others not only knew what TN was, but lived with it and had a keen understanding of how it effects all aspects of our lives.
This brought comfort, commiseration, empathy, sympathy, understanding, tears, laughter and shared knowledge.
I could finally read in depth of how others experienced TN. I read and read and read…
When my left side came out of remission and suddenly became resistant to any and all meds, I was able to read of others experiences with the procedures offered to us.
It is because of others sharing their stories that I even considered MVD as an option for me.

The never ending support and encouragement, the general warmth that greeted my participation on this site all helped to ease my isolation and struggle.
I swear having this community to visit several times a day kept me from going completely insane as my life changed so drastically and my isolation from work, friends and social activity became complete.

I also felt incredibly useless until after sometime I realized I could help others by participating more at LwTN and share my thoughts, opinions and hugs, I finally felt like I was contributing to something.

I am so grateful to this group and for this group.

There are no words to adequately convey “what I’ve gotten from this site” !!!
(( hugs )) Mimi xx

1 Like