My TN is getting progressively worse. What medications did you find were the most helpful? Are there any new medicines out there?
Hi Anna,
I’m having a rough spell too. Rotten isn’t it.
I found Tegretol very useful at first. I’m now taking 1200mg a day and dare I say things are a teeny bit better. I have my first Neuro appointment next week and hope they can suggest something that will give more relief.
Hope you get some relief soon,
Kind Regards,
Jo X x
when I first was diagnosed the doctor prescribed me 100mg chewable tablets and told me to take 3 a day and up the dosage to 6 a day if that didnt help…a few days later it was upped to 9 a day… 2 weeks later to 12 a day (1200mg)…2 weeks later he told me that it was safe for me to take up to 2100mg a day as needed for pain and thats what I have done…if Im not hurting at all I just take take 2 a day (200mg) on bad days I take 6 at once to start with then 5 every 6 hrs after that til the attack stops…what kinda sucks is that I think people build immunities to the medication the more you take them so they help me less and less its more of just a mental help now I think lol
I am taking Neurontin 900mg 3 times a day, but I am allergic to most other medicines that can help. I was wondering what new medications are our there that can help. I am allergic to Tegretol, Baclofen, Trileptal, and much more. Help, I am getting a MVD for my left side in June, but I still have two spots on my right side that were not addressed by my right sided MVD so I will need medication to help that. Neurontin helps some but not enough. I am caught between a rock and a hard place with little choices.
Thanks for your input! What is the anti-inflamatory diet, and where can I find it? I am hoping the surgery will help the left side and that I can somehow get the leftover right side pain under good control. I already have a very limited diet because of allergies but I am willing to look into anything that might help my pain. Do you get input from a wholistic doctor to guide you in your treatment? Where did you get your information about what can aggrivate and help relieve you pain?