Comment by silverwolf 1 hour ago
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I have been suffering from TN for 35 years now, and have had nerve blocks, been prescribed methadone, tegretol, baclofen, demerol, oxycodone, and a slew of other narcotics, and controlled substances. The only thing that stopped the pain immediately was stadol which no dr. will prescribe any longer. I am guessing because too many people were developing an addiction to it. I never did, all I know is it stopped the pain in it's tracks. It would knock me out for a short time but that is really all you can do for TN. I had MVD in 2007, and was told by my neurosurgeons that this procedure would allow me to be pain free for 10-12 years but 2 years later, I was having attacks again! There is no cure or medication for me anyway that will give me any type of relief, except the stadol or methadone. I cannot seem to get any dr. to understand that all I need now is pain management. No more procedures, or meds that do not work but keep me doped up! I will be 50 years old this year, and I just need something that when the attack hits, to knock me out!.. I was on the treadmill the other day, which triggered a nasty attack that lasted about an hour! I am not a drug addict but I feel that is how these doctors look at me.. I just need something to stop the pain, which is something to put me out into a deep sleep so I do not have to suffer! I awoke the other night at 2:30am with a hideous attack, so bad, I was disoriented, and walking into walls trying to get to my xanax, oxycodone and my frozen rag from the fridge! I am so tired, and weary of the pain, I don't know what to do! It has been so bad at times I have considered suicide because I can't seem to get any help! but that scares me even more than the pain!.. Thank you for listening..

I saw this in the forum and commented there. :-)