Hello everyone . I’m new here and would really appreciate any feedback/insight on having TN and your job entails having to wear a headset ? I have TN 1 and TN 2 on left side – some nights attacks get so bad my left ear will turn blood red – I’m already on a temp reduced schedule - currently on 600 mg tegretol – starting to wonder if I’m even going to be able to continue what I do at all considering the headphones ? anyone able to work with headphones ?
Hi Ashley, I use headphones at least 50% of the day most days and I work fulltime. Mine is TN1 in the middle branch (down cheek, beside nose and into upper jaw). I haven’t found the headset itself to be a problem, just the talking on the phone. Several months ago my employer made what they term a ‘reasonable adjustment’ to my workload, cutting my general work by 25% and not having to take inbound phone calls. I would still have to make outbound calls but I could mix those up a bit with paperwork inbetween. Now I have got meds and pain under control I am doing a staged increase up to a full work capacity. My headset is really lightweight, and only has the earpiece on one side. Hope you can work something out, maybe a different style headset?
Also welcome to the website Ashley, you will find a wealth of knowledge and advice for TN1 and TN2 here, understanding and hope.
Thank you Duckie for reply . What you said makes total sense . I have requested a new style of headsets . That was just a verbal
Oops … Wasn’t done replying lol – I’ve made verbal requests for new style of headset . They seem to be dragging their feet … I guess I should ask neurologist maybe to write note ? I Guess that could fall under reasonable accommodation ? And yes I totally agree with you on the talking part . – taking one call after another while dealing with attacks is killing me lol literally it feels like sometimes … My tn 1 affects v2 and v3 . Tn 2 pretty much sticks to my upper left side gums… Thanks for the welcome as well 
Make sure any request is via email so you have a recorded history, and yes a letter from doctor or neuro would probably help them to take it seriously. Are you just on tegretol? From other people’s posts I think TN2 needs other meds. Have a look around the site, I think there is a group for TN2 sufferers to post in, and also a section on different meds.
I am currently on 500mg tegretol and have had about 3 good weeks in a row. Even managed to walk the dog.
Yes that was my understanding with tn2 not typically responding well to tegretol . It’s obviously helped me with the more intense shocks of tn1 . Except at work Ill have breakthrough pain with that 
even asked neurologist about adding Neurontin … She wasn’t too keen on that . But in all fairness she has never treated anyone with TN … (Mainly deals with stroke patients ) that’s why she just referred me this week to get in with Dr John Tew . Whom I saw was mentioned several times in striking back – so I’m hopeful and crossing my fingers that he will have some answers for me … Its just so hard trying to stay positive and dealing with this kind of pain day in and day out . Thanks again for your reply - means a lot .