Stoke The Fire!

My dear Family and Friends;

So many emotions, thoughts and I dunno(s)...TN1, meds, adverse reactions, 3 BRAIN surgeries, no help, some damage, more meds, more reactions. I've been sucessfully titrating on my own, as I don't get pharmaceutical reimbursement and I feel better for this. However, since the end of January (about 3 years to the date of TN1 diagnosis); another 'issue' has diverted my attention from that pain.

I have had a struggle with head and neck cancer. Underwent brachytherapy to my left neck node and removal of tongue lesions. The latest Pet Scan is clear, the last biopsy is non malignant. Once again, I was in good hands with Dana Farber and other powers. This time, it seems to be working!

I so wanted to get this gorilla off my shoulders. Seems to be a 'do as I say, not as I do', though I felt it better to hold off until the final results. I try to share hope and a positive attitude, now, I believe I am!

Problems shared are problems halved; I try not to burden, so now I will attempt to share my joy.

Please, please have HOPE! I've found positive to snowball, negative snowballs faster and harder.

The cliches, such as; cards dealt, Karma, it is what it is, the psychobabble bs...it all means nothing. We are in this together, so much stronger, as a group. We must stay with it for the long haul. I am even considering to 'practice as I preach'.

Thank you so much. My very best to you and yours, bob

Thank you for reminding us that there is hope! I hope you continue to do well with everything.
ally

Bob,
You have been through so much. And you have a great attitude. I do wish you the best. And I wish all of us hope. It isn’t easy. But reaching out to one another is such a blessing to those giving and to those receiving.
Liz

Hi Bob,

I’m sorry to hear that you are going through so much. You do have a great attitude! You are such a strong person for going through all this. I wish you the best!