I went in for my second attempt at gamma yesterday. I had a seizure during the first attempt 3 weeks ago so I couldn’t get the treatment. They put me out before doing anything to me yesterday so all I know is I woke up with 6 painful holes in my head and they said they could see my nerve reall well in the imaging. Apparently my trigeminal nerve is unusually large. They called in Dr. Kim to double check my treatment plan just to make sure they didn’t aim at my Teflon from my mvds. All was good and they blasted me! Dr. Kim said it will take 4-6 weeks to know if it worked. They can do it again if they need to. He said the start with the lowest level of radiation that usually helps everyone so. They don’t over radiate people but they can do more. I’ve mostly been in bed resting since I got home. It set off a flare up of my tn having all of the touching of my face and moving of my head. Fingers crossed that the radiation is doing its thing and I will be pain free in a couple of months. Leading up to this procedure I became kind of withdrawn. I think after two failed mvds and the seizure at the first gamma I got a little depressed about my future. Feeling hopeful again. My brother is coming to visit with my niece and nephew this weekend so hopefully that’ll recharge my spirits. Yesterday was my dad’s birthday too. Poor guy 
Thank goodness for my amazing parents taking care of me and my two dogs!
Fingers & Toes crossed for you my friend!
I hope you start to feel better really really soon.
And that this feeling hopeful again lasts and encourages you each day. You know I know how hard it can be…one day at a time! Enjoy the visit with your Brother and the kids. I hope it lifts your spirits …sending positive vibes girl!
Huge ((( hugs ))) Mimi xx
Thanks Mimi! I definitely need to make sure I keep coming here. No tater what you need the support of other people who have walked your walk. Trying not to be withdrawn 
Sometimes its okay to withdraw and heal or withdraw and remove yourself from evvvvverybody's TN !
Glad we heard from you and will look for updates!!!
I go to the best doctor for TN. He is in Texas. I see you are too. He will not brush you off or get tired of treating you. Look him up online. And then run to see him because he saves lives for people with TN. Dr. Brian Loftus, Bellaire, TX. He is actually is in Houston.
When I am in horrible pain I tell my husband I will do anything to make it stop. So when I was afraid of surgery he reminded of what I said and then I had the surgery. So I ask you is: is. going to Houston to far to get the best help?
I used to see dr loftus. He prescribed me a large dose of a medication I was allergic to when this all started. I have not gone to see him since. I’m sorry, I will have to strongly disagree about him being the best dr. I live in The Woodlands. I now see one of the most respected neurosurgeons in the world Dr Dong Kim. Pick up the latest issue of Houstonia Magazine about Houston’s top doctors. He is one of the few who actually got a write up about the work he’s doing. He is the head of Mischer Neuroscience Institute and runs the face pain clinic. He did my gamma knife and will be doing a rhizotomy on me in a few weeks. I see the neurologist he has on staff in his office right now.
Both of my mvds were done by Dr. Zubay in The Woodlands, and he is a fantastic surgeon as well.
I saw Dr. Loftus for quite a long time for my migraines before I got my tn diagnosis (by a different doctor) and I would have to say I would not recommend him for anyone dealing with TN. He’s a nice enough guy, but I wouldn’t trust my pain control to him. Just my .02
I had gamma knife in 2003 in Denver and had immediate relief. Unfortunately, i had a relapse in 2012, but I've now come off all meds after going on a strict anti-inflammatory diet. two months pain-free!!
Good luck. I know how awful it can be.
Ted
It’s impossible to predict the future, but positive thoughts are very healing, so go where the optimistic roads lead you. I wish you happy healing and a good life!
-Laurel