I have been experiencing TN symptoms in my ophthalmic branch for approximately 18 months. All pain has been isolated to the temple/forehead region. Recently, I began experiencing acute pain episodes in my cheek, ear and nose (same side as my TN pain). Has anyone had a similar experience? Any thoughts?
I’m scheduled for an MVD in the new year, so I really want to have everything sorted out!
My pain is mostly in my nose , ear , cheek , temple- since the medications - Recent- it has been moving north towards my forehead/ scalp . All of these branches of nerves come together at the temple area , thus 'Tri' geminal 3 branches inter connected . I hope your MVD goes well and you get relief . Pain in the maxillary branch is no fun .
I found that looking at images of the anatomy of the nerves has helped me to better visualize the problems.
[img]http://i.imgur.com/DDfJPAE.jpg[/img]
Here is a link to a detailed view of these nerve branches/\
Thank you! I hope you can find some relief as well! Best of luck!
Wow! I almost thought I was reading my own post from yesterday. I am terrified that my TN is progressing. I have a horrible "toothache", but the pain has fluctuated up and down all day. I will call the dentist tomorrow and PRAY that I need a crown or that there is an infection. My pain is in my forehead as well, but I have suffered for 3.5 years. I had my MVD (left side) in 2013. It decreased my crisis days (ER/IV's), but I still am in constant pain. My initial pain started on the left side, but it has become bilateral, but still the worst on my left. There was a pretty bad compression going on, on my left side. No right side compression was seen, but this new pain is on the right.
I am fighting my insurance company for a peripheral nerve stimulator right now. I don't think the PNS will help jaw/teeth pain though. I am pulling for you and hoping that you will see permanent relief/reduction. I am grateful we are not alone in our struggles. It is difficult for my husband and family to comprehend how challenging it is to battle this demon every day. Love and peace to you.
I have not heard from many people who have forehead pain! It’s nice (yet awful) to hear from someone who is experiencing similar pain. I’m so sorry to hear about your pain spreading, as well. I’m 16 and it is quite scary to hear from all these people with their trials and tribulations! But I know there is hope and I’m sending some to you! Best of luck for this new year!
I am glad that I found you as well. You are right in saying that there are not many like us out there. I would love to keep in touch with you and to answer any questions you may have about the MVD as it relates to forehead pain and recovery. You are so young to be dealing with this. I am 44 and often wonder how I drew the short straw in the terrible disease lottery. Please friend me on Facebook (only if you would like), and maybe we can correspond a bit. My family thinks I am crazy to look at this site due to everyone's tragic stories, but it sure helps to see that I am not alone in this whole ordeal. My name is Lora Smith Romney (on Facebook). When is your MVD scheduled?
LadyFace said:
I have not heard from many people who have forehead pain! It's nice (yet awful) to hear from someone who is experiencing similar pain. I'm so sorry to hear about your pain spreading, as well. I'm 16 and it is quite scary to hear from all these people with their trials and tribulations! But I know there is hope and I'm sending some to you! Best of luck for this new year!