Im having my trial run at a spinal cord stimulation done this afternoon and I really just hope I get some relief. I’m worried that is this doesn’t work my doctor will
Give up on me. As many doctors have before. I’m not sure I can handle this not working. Wish me luck !
All the very best from all of us Andrea!!
Good luck Andrea, I hope you get relief
Wendy
Let us know! There are sooooo many things to try before you let a doctor give up on you! We have a list of doctors here - even if you have to find a way to leave your state for treatment like I did!
Sorry I haven’t updated it’s been an emotional couple days. I wish I had good news but I don’t. They tried to so the spinal cord stimulator on Tuesday afternoon
But about half way through they stopped at they could not locate the TN nerve with the electrodes. He was able to get to the arm, half way up the neck, chest and head. It was probably one of the worst
Things I have been through, I was sadated but still able to feel him freeze my back, and feel the electrode go through my spine in some places. When they turned the stimulator on to test the electrodes they turn it up high and it’s hurt. I was emotional when he said sorry we have to stop cause its clear we are not
Going to be able to locate the TN nerve this way. When I was in recovery I broke down, it’s hard to stay positive or hopeful when things keep not working.
My doctor came in to talk to me about what he would like to try next, I go back in on July 5 th for them to try and put the electrodes right in to my face from behind my ear.
My doctor said he still doesn’t know if he will be able to find the right spot but needs to try so he knows.
I told my doctor I’m ready to give up and he told me I can’t cause he’s not ready to give up.
I’m trying really hard to hang on, and to make matters worse I have been having a pretty bad flare up since 5 am today!!!
Kc Dancer Kc said:
Let us know! There are sooooo many things to try before you let a doctor give up on you! We have a list of doctors here - even if you have to find a way to leave your state for treatment like I did!
It makes me sad to read this, so sorry for you Andrea