Sorry for the "topic " - but i feel i HATE them all

General General TN & GPN (Old Site)
1

i have quitted.

how can it NOT be mental ?

of course we ARE mental cases.

who won't be ? after going with such EXTREME pain to doctors... they can't even find a diagnosis... expext that i should see a psychiatric - who would'nt go mental.

i am sorry . after two years of this 24/7 "unproven" pain - i have quit.

i hate them all.

from family to friends to doctors.

they are to blame in part of this.

everyone going like this with constant pain with no relieve will go crazy.

i know i keep trying and finding. i KNOW that. cause the pain IS real)

but it's easy for them for me to go see a they psychiatrist

.

paid a fortune to another "specialist" in oral surery here. she was very nice. really.

.but CAME with NO conclusions at all. i paid so much , really.. and we came with NOT one conclution. only that i was a mess - and i should see a psychiatrist to help me cope.

i know it sounds wired... but i have serenity in my heart. i KNOW what is real. the only insane thing is the world outside.

2

Do you have the special MRI machine where you live - that can SEE compressions?

3

Kc - i don't think so... our MRI for the jaw here is 1.5 tesla. i've done a jaw MRI this week (i don't expect them to see nothing). i don't think they know here what to look for.

it's so absord.. i KNOW there is something there to see.. but no doctor would make an effort to try to see it.

can you please link to this MRI machine you are talking about ?

by the way - i don't think my case is due to a visible compression. maybe

4

Sorry to hear your pain, physically and emotionally. This does make us feel like we are going crazy sometimes. I am not sure if you have been diagnosed with TN or on any medication. If not, have you brought TN literature to a doctor listing the symptoms, treatments etc? It takes years to get a diagnosis for some people not matter where they live. Please do not give up and let your TN family help in any way we can. You are not alone:)

5

Hope this makes sense --- I know there is a SPECIFIC type of MRI -- maybe it is this:

Visualization of Vascular Compression of the Trigeminal Nerve With

High-Resolution 3T MRI: A Prospective Study Comparing Preoperative Imaging Analysis

to Surgical Findings in 40 Consecutive Patients

Who Underwent Microvascular Decompression for Trigeminal Neuralgia

6

AMEN COLLETTE!! CAN YOU HEAR HER? DON'T GIVE UP I know what you are feeling and how empty life can seem. Keep doing what you know in your heart you need to do when it comes to your medical care. I am so sorry that you are facing this irl alone. Reach out hear in cyberville and learn all you can! blessings~~



collette said:

Sorry to hear your pain, physically and emotionally. This does make us feel like we are going crazy sometimes. I am not sure if you have been diagnosed with TN or on any medication. If not, have you brought TN literature to a doctor listing the symptoms, treatments etc? It takes years to get a diagnosis for some people not matter where they live. Please do not give up and let your TN family help in any way we can. You are not alone:)

7

I am so sorry to hear that after two years you still haven’t got diagnosed . It is difficult to get the right doctor , but do not give up hope. Some members here take many years before that got the right doctor.
Take care .

8

It took 17 years for me to get a diagnosis. I had 7 neurologists and 2 of them were at Headpain clinics. When I finally got the specialized MRI for TN it was like "ta, da". I felt angry that it had taken this long. I had spent so many years feeling "broken". I was told by the Neurosurgeons at Columbia that TN2 is SO hard to diagnose and it is not unusual for it to not be diagnosed for years. I have had so many MRIs through the years, also had an angiogram at Yale. It was the MRI with the TN protocol that made the diagnoses

9

Nir

I understand your frustration but don't give up. The right doctor is out there.

I just did a member search by country and there are 7 members listing Isreal as their country including you. You should reach out to them, send them a message and ask them if they have had success with their doctors and ask for referrals. They might even know who the leading TN doctor is in Isreal, even if they have not used him/her themselves.

Elaine

10

hi all - you are GREAt.

i want to make clear. it's not that i'm not diagmosed. i've been to , i guess about 80 doctors in 2 years. ALL THE fields.. .spent so much money and time (about 3 doctors a WEEK !!!! i'm not kidding).

they all say somegninh else.. which means- they don't know.

most of the them says in NOT TN (and i agree - i have constant 24/7 pain... i feel like there is a knive in my mouth.. but not like peeking needles.. it's a "constant knife"...

but some have suggested TN.

some say it's ATN.

some say it Nerve Neuoroma.

some say is's inflamation of the jaw.

some say - they don't know - everything is FINE with me.

some say it's "dental awareness"

some claimed the i have food stuck between my theeth and it causes such pain.

most say - DONT DARE take out the tooth. but some say - yes - try to pull out the tooth.

some check me out physically - and CAN see i've had a slight change in my jaw - they can't explain it

and many claim - it's due to my Mental state that aggravates the pain and i should only take care of that.

it terms of meds - doctors here are VERY VERY fine with me. it's not that i don't have access to meds.

they're willing to let my try Tegrato , Lyrica (tried) . Cymbalta, and even Medical Marijuna.

almost everything. so i can't say anything wrong.

it's just - such such severe pains ALL day.. i'm getting "wipeds" and no REAL diagnosis.

iKc many many many thanks for the name of the exam.