yes, I am alive and well and doing much better. After how cold our Canadian was I felt I would not be doing well. During the month of February I only ventured out approximately 5 days. That was because it was soooo cold and it was windy. Even though bundled up I face protective scarves and hood and door to door dop off and pick ups by hubby I noticed that I was flaring up. I ended up with heating pads, Capsacin and upping my Carbamazepine along with Oxycocet. Fortunately for me the pain started diminishing after a few days.
I now know that I must even now that the weather has gone to plus 5 Celcius that if there is a wind, even small, that I will require a scarfe to keep from having a flare up
I am able to go out more to get some sunshine which brightens my disposition. I was always so positive and upbeat but since MVD and being closeted in over the winter I feel I will become my old self with more life as I believe I will continue to feel better. My head is still sore inside but is getting better.
I am looking forward to a week in Cuba to really uplift mind and body. Nothing like lots of sun, sand and the ocean and swimming pools to boost one’s energy and feel good nature
I regret I have not been a part of any of the discussions for the past couple of months and I truly look forward to joining in after my holiday. I miss the interaction and for everyone in this group of people I say keep up the faith, find something that makes you smile every day and hopefully we may sell truly be pain free
John. I feel sensations on my right cheek if the wind should be a bit strong. I do not have any of the old TN which was on my upper right jaw and lower jaw which was stabbing and aching every day. That has totally gone. I think I am more paranoid that if a breeze may set off some pain. I try to avoid that. I had a whiplash incident in April and I was advised to go to therapy. That was a HUGE mistake. They gave me a chiropractic who said he would be most careful. However he massaged gently up the back of my neck near to my surgery entry point. The following day I was in excruciating pain. I now know exactly what others with severe TN 1 go through! My right side of my skull where the MVD was done was just electric! Shooting pain every few seconds and this lasted for 12 hours. I did not know where to go or what to do. I landed up on Oxycodone and Lorazepam for a few days. I am doing much better now
John if you are thinking about an MVD be informed and confident in your surgeon. I had heard from another who had MVD and it lasted 10 years before she had to go for replacement pads. My neuro said nothing lasts forever. So I am hoping that after the two year mark that I will be top notch and looking forward to continuing good fortune I do not have the daily pain of TN interfering with my life. For the first time since diagnosed in 2002 I get up each day looking forward to being able to fo most of the things in life I enjoy the most and being pain free. I AM ALIVE I am happy and very very thankful for the MVD giving me my freedom
Thanks for asking.
Chippy