Searchable database

I contacted Ben Munoz, whose organization is insrumental in the creation of this site, and here is his reply "James,

I understand your dilemma. I would suggest you post a question as a new discussion here. Also, I would ask folks directly. Everyone here is super friendly. They’ll either know the answer or point you to a good web page instead of you having to search on Google yourself.

Thanks for the suggestion!

So, the ball ios back in my court to create a website, possibly a spreadsheet on it open to screened input, and volunteers to contribute there personal(not linked to their name on spreadsheet) info on the parameters of there illness. I am a disabled veteran with other challenges, but I will devote as much energy as I can…Jimmy