I'm still new to this illness, and my pain is infrequent now, but I am not adjusting to the drugs well.
Here is my take, and please respond if I am barking up the wrong tree. Although we all have a diagnosis of GPN, there are many different causes, many of which are unidentified. There may be several different relief treatments, depending on individual causes. Doctors, even some neurologists seem like a backyard mechanic working on a Volvo, due to the rarity of the illness.
For instance, my neurologist said lesions at the base of the skull cannot cause this, although many reptable web sites (Mayo, NIH, etc) disagree. My feelings are ,if there is a universal hope for all of us, it would start withh some sort of a seachable data or spreadsheet. We could voluntarily input relevent facts concerning our case, and perhaps the sum of all our symptoms(and cures) could lead to a better understanding of our illness, and therefore a step to wellness. I am barely into this, and I am already tired of the general ignorance of the local medical community. (Dartmouth Hitchcock in NH is very reputable). For a rare illness as this, our individual attempts at wellness are subject to the random fate of eventually happening upon the right specialist for our illness. My first impression of our dilemma is that such a database might be a powerful tool towards wellness.