In 3 weeks I am having a repeat MVD and a Internal Neurolysis. Internal Neurolysis is not a common TN surgery, but my neurosurgeon told me he has done it on a number of patients with AD, who had good outcomes. I have TN1. For 45 years the nerve , in my case, was crushed by bone due to a congenital birth defect. The surgery does not look for compressions, but scaring and adhesions. When I goggled the procedure, it often came up as this is the surgery done to treat Carpal Tunnel syndrome. I am not excited about having my brain opened up again, but I am hopeful. I had complications with my first MVD, and the surgeon is going to take steps to keep them from happening again. He will not wait for the CSF leak out the nose to start before he starts me on the lumbar drain. I will be back to being in bed for 23 1/2 hours a day not being able to lift my head off the pillow. I will be kept in the hospital for 4 -7 days.
My neurosurgeon told me the Neurolysis is not a cure, but could give me 3-4 years of pain relief. Oh, how happy I would be for just one day of total pain relief!