I had OT today for my stroke. I was throwing balls into the rebounder when one flew back and hit me right in the mouth. Square in the mouth actually. Of all places to hit me, it had to be there. I have been doing SO well with pain the last two days. I left therapy early and took two Neurontin as pain had already set in by the time I got home. The tip of my tongue has ALMOST woken up. You know when your arm or leg falls asleep? At first it is dead dead, then sort of dead, then almost awake. Mind went from being dead dead to almost awake, with tons of tingling. I think tightness in my face has improved as well. I am still packing my mouth and face in ice, as well as the back of my head. My B12 is shot. My doc has been giving me shots of that, and I have been taking b12 as well. I think those are helping. After that, nothing else really helps me. Somedays, the pain waxes and wanes ( and even diminishes) but my mouth is ALWAYS numb. Everyday, I ask Lew to "poke my face and mouth". He writes down what is numb and what isn't, and has shown me that I am making some small improvement. This is hopeful. The nerves are doing alot of jumping today, and often times gives me that quick electrical zap that brings me to my knees. I wish that would happen with warning! There is quite nothing like grabbing your face in public and hollering out "owwwwwww".
There is a spot behind my ear on the incision line that keeps pinching me and driving me nuts. Im going to have to try some massage on that tonight when we do deep massage and reiki for the rest of my face. I picked up some capsizin and am trying to find my hot rocks. ( Into alternative stuff here big time).
When I get the money, I want to do hyperbaric oxygen, and some contact reflex analysis and what not. I want to get out of pain, ultimately. If it stays NUMB so be it, but I wish this waxing and waning pain to leave. My luck it will come on and just stay with me for life. Ugh, I shouldnt say that. Im off to meditate then lay down and do some thinking with my brain. Trying to teach your own brain to WAKE UP and get with it, can be so surreal.