I went for my last rot canal and i knew something was wrong with my anesthesia because i felt way to numb and couldn't keep my eye open. When i got home it took about 6 hours, which it never lasted that long, for the numbness in mu face to go away. When it did, i realized where my endo gave me a shot felt raw and tingly and i have no feeling . Merry Christmas to me. I cant take this anymore, im turning into a crippled person at 27. I went to my TN doc because of swelling, and she was pushing on both sides of my face. she asked if it hurt, i said yea itrs horrible pain, and she said well im pushing near your sinus's so lets treat your for a possible sinus infection. Ive been living with this for over a year, i don't have any symptoms of a sinus infection and i know i don't have one. Time for a new doctor. Ive literally had enough, was put an anti depressants because i cant handle all this and wont leave the house. Ive never felt so upset and alone. How am i going to eat if i cant feel the top of my mouth?! :( worst Christmas ive ever had...if anyone can please give me some support it would mean the world to me...Thanks<3
There's a fair chance that the numbness will go away. I've had it happen when my dentist uses articaine instead of traditional lidocaine. Interestingly enough, my mouth is usually numb for four hours instead of the usual 15 minutes as well.
I've had a sinus infection that I was unaware of, we tend to get a little jumpy when it comes to our faces and my symptoms were mild after a cold. I wouldn't fire your neurologist just yet, she's just trying to track down all possible triggers for your pain. If you could be in a remission but for a sinus infection, would you still be mad at her?
I understand that you're angry and sad and depressed, so I'm going to give you the gift of truth for Christmas: It's not in your best interest to allow yourself to quit living your life. Don't let your pain and fear become your excuse and don't feel sorry for yourself for one minute more than you absolutely have to. With time and practice you'll learn to cope with this and it won't feel so terrible.
I wish i was in remission, only time i was in remisiion was for 2 months after i was taken off neurontin. my pain is getting worse everyday im type 1 and type 2 so i have horrific burning and sharp pain every day for the past year, i cry 3x a day when i brush my teeth and if it keeps getting worse i dont see how i can ever get back to a normal life. One thing i cant learn to do is accept it, because i cant...its to depressing. My doctor said you that you prob cant have kids unless and mvd is done because otherwise i cant get off meds. my whole future i thought i had is slowly becoming a maybe. its very scary. a year and a month ago i had what i now realize was the perfect life and i should have done more when i could of..but then again no one expects to get a diagnosis of this and esp at my age. thanks for replying and helping
Tina S said:
There's a fair chance that the numbness will go away. I've had it happen when my dentist uses articaine instead of traditional lidocaine. Interestingly enough, my mouth is usually numb for four hours instead of the usual 15 minutes as well.
I've had a sinus infection that I was unaware of, we tend to get a little jumpy when it comes to our faces and my symptoms were mild after a cold. I wouldn't fire your neurologist just yet, she's just trying to track down all possible triggers for your pain. If you could be in a remission but for a sinus infection, would you still be mad at her?
I understand that you're angry and sad and depressed, so I'm going to give you the gift of truth for Christmas: It's not in your best interest to allow yourself to quit living your life. Don't let your pain and fear become your excuse and don't feel sorry for yourself for one minute more than you absolutely have to. With time and practice you'll learn to cope with this and it won't feel so terrible.
Dear Jen,
I'm so sorry that you feel that bad. Your picture reminds me of my husbands niece. How long have you been on the antibiotics for the sinus infection? You should have some relief by now if that's the case. The feeling in your mouth should return eventually. Your root canal and the anesthesia, like any trauma to the face can cause that numbness, it doesn't mean it's permanent.
So, is there a Mom's house you can go to today, have some hugs, and buttery mashed potatoes with gravy? I hope so. I'll be thinking of you and sending you lots of good energy. :-)
Susanne
MsGera said:
Dear Jen,
I'm so sorry that you feel that bad. Your picture reminds me of my husbands niece. How long have you been on the antibiotics for the sinus infection? You should have some relief by now if that's the case. The feeling in your mouth should return eventually. Your root canal and the anesthesia, like any trauma to the face can cause that numbness, it doesn't mean it's permanent.
So, is there a Mom's house you can go to today, have some hugs, and buttery mashed potatoes with gravy? I hope so. I'll be thinking of you and sending you lots of good energy. :-)
Susanne
I'm going to say something that might appear sort of harsh on the surface, but I wish someone had told me early on. If you aren't good with stark reality, please do not read past this point. If you do read it, please know that I am only saying it because I don't want you to continue suffering, and it's all I can offer to help. I'm not good at meaningless words of sympathy.
You aren't special and neither is your pain. Even your age isn't all that impressive, lots of people develop it young. I was 30 with a nine year old kid. You were never entitled to any dream future, but you can still have a perfectly good one if you want it. If you don't, that's your choice and you will be the only one responsible for the failure.
If you could choose, would you rather have spinal cancer? It's horribly painful and will kill you. How about gout? Would it be better to watch your joints become deformed and immobile? What about epilepsy? How many people experience a lifetime of anticonvulsants for that? There is a whole world of other people with equally bad problems who manage to get by, you can too.
Once you learn to accept life as it comes, with all the bumps and warts that make that dream of perfection impossible, you'll find that doors that seem to have closed are open again. Can't have kids? Adopt some. Can't handle a career? Start your own business. Can't go out in the cold? Live someplace warm. Just about everything has a work-around if you want it to, but you have to believe that it is possible first.
I know this is strongly worded, but like I said, I wish someone had told me this stuff before I wasted a bunch of time feeling sorry for myself. I didn't receive adequate care until I stopped being my own victim.
SufferingJen said:
I wish i was in remission, only time i was in remisiion was for 2 months after i was taken off neurontin. my pain is getting worse everyday im type 1 and type 2 so i have horrific burning and sharp pain every day for the past year, i cry 3x a day when i brush my teeth and if it keeps getting worse i dont see how i can ever get back to a normal life. One thing i cant learn to do is accept it, because i cant...its to depressing. My doctor said you that you prob cant have kids unless and mvd is done because otherwise i cant get off meds. my whole future i thought i had is slowly becoming a maybe. its very scary. a year and a month ago i had what i now realize was the perfect life and i should have done more when i could of..but then again no one expects to get a diagnosis of this and esp at my age. thanks for replying and helping
Tina S said:There's a fair chance that the numbness will go away. I've had it happen when my dentist uses articaine instead of traditional lidocaine. Interestingly enough, my mouth is usually numb for four hours instead of the usual 15 minutes as well.
I've had a sinus infection that I was unaware of, we tend to get a little jumpy when it comes to our faces and my symptoms were mild after a cold. I wouldn't fire your neurologist just yet, she's just trying to track down all possible triggers for your pain. If you could be in a remission but for a sinus infection, would you still be mad at her?
I understand that you're angry and sad and depressed, so I'm going to give you the gift of truth for Christmas: It's not in your best interest to allow yourself to quit living your life. Don't let your pain and fear become your excuse and don't feel sorry for yourself for one minute more than you absolutely have to. With time and practice you'll learn to cope with this and it won't feel so terrible.
hang in there
Oh Jen! I am soooooooooooo so sorry. You are way to young for this! My mom tells me that I am way too young, but I am 43. 27 is REALLY too young. Wish I could be there to give you a real hug, but this is the best I can do. (((((((HUGS)))))) Much love to you and I hope you get a better doctor soon and they can get you fixed.
Tina and Jen there are many aspects of TN which i believe makes it much worse then other conditions.
People dont understand it and have never heard of it , that makes life so difficult. (The more publicity the better)
You can be in constant pain (but with trial and error the right meds can help)
The nature of the condition does not follow a set pattern which makes it confusing for patients to know what to expect. (sometimes meds need to be changed but it is not terminal )
It can worsen with time (but not always)
An operation is not always a cure and carries risks ( but many success stories on here)
Depending on the cause of TN an operation may not be a option for you (TN2 more difficult to treat)
Human error can be the reason for all of this, ie dental treatment. ( Dentists dont admit it, maybe we were prone to it, i dont know, and do lodge a complaint) But the dentist did not set out to harm you. We have to forgive and understand this for our own piece of mind)
If you are luck enough to be in remission you live in fear of it returning. (Enjoy and be grateful)
Because it is uncommon little money goes into research. ( but there is a great deal of research going on into Neuropathic pain for backs etc which is very common, we may benefit from this research ) It effects the gene known for carrying pain, watch this space it is being carried out in the UK
All of the above are the reasons I sympathise so much with Jen but at the same time Tina you are correct there are steps you can take that are right for you that may help the condition and I think in taking steps it can make you feel you have some control over the condition. My very best wishes to you both xxxx
I'll quit hogging Jen's discussion now and go write a blog post about why I respectfully disagree with you.
elstep said:
Tina and Jen there are many aspects of TN which i believe makes it much worse then other conditions.
People dont understand it and have never heard of it , that makes life so difficult. (The more publicity the better)
You can be in constant pain (but with trial and error the right meds can help)
The nature of the condition does not follow a set pattern which makes it confusing for patients to know what to expect. (sometimes meds need to be changed but it is not terminal )
It can worsen with time (but not always)
An operation is not always a cure and carries risks ( but many success stories on here)
Depending on the cause of TN an operation may not be a option for you (TN2 more difficult to treat)
Human error can be the reason for all of this, ie dental treatment. ( Dentists dont admit it, maybe we were prone to it, i dont know, and do lodge a complaint) But the dentist did not set out to harm you. We have to forgive and understand this for our own piece of mind)
If you are luck enough to be in remission you live in fear of it returning. (Enjoy and be grateful)
Because it is uncommon little money goes into research. ( but there is a great deal of research going on into Neuropathic pain for backs etc which is very common, we may benefit from this research ) It effects the gene known for carrying pain, watch this space it is being carried out in the UK
All of the above are the reasons I sympathise so much with Jen but at the same time Tina you are correct there are steps you can take that are right for you that may help the condition and I think in taking steps it can make you feel you have some control over the condition. My very best wishes to you both xxxx
Tina i went to your blog with great anticipation and you didnt let me down! We are all different and I think there are different degrees of pain ( not taking anything away from yours) And i guess we all have different pain thresholds, but I loved your perception of TN and the way you cope, well done girl.
Physical Pain is pain and no one should have to deal with it!
thank you! agreed!!!!!
jstagrl29 said:
Physical Pain is pain and no one should have to deal with it!