Radio frequency Ablation of the sphenopallatine nerve ganglion

Yesterday I had a right and left sided RFA of the sphenopallatine nerve ganglion. I felt that the surgeon was excellent. He has done 50 of this type of RFA and has been instrumental in developing this type of RFA to pain patients at the Pain center where I am being treated. His background is as anaethesiologist.

This was done as an outpatient surgery. I checked in,changed into a gown and an I V, blood pressure, pulse etc were set up.

The surgeon came out and spoke to my husband and myself to explain exactly what he planned to do and answered all of the questions that we had and reviewed the risks and goal. A few things that I found out were: he was going to do one side initially because the procedure is painful. I asked for both sides to be done if at all possible.

He agreed that he would if he felt that I could handle it and as long as things went smoothly. He had read my complicated history about my former pituitary surgery, csf leak repairs and all diagnostic blocks that had been performed in the past that had worked on both sides to this area.

In the OR I was prepared, sanitized, given oxygen and the areas getting the RFA. He did my right side first. A long needle that would be able to pulse the nerve/ s was slowly inserted into the gap in the mandible bone and fed up to the area were the nerve that he was trying to reach within the ganglion (f2). I’ll admit it, it hurt!!! They used sedation and a total of 13 vials of fentanyl to help with this. The surgeon used a monitor where he was able to see quite a bit. what was especially painful was the part where the doc was trying to find the exact spot to ablate. So the needle was being moved around in partial millimeters. When it was moved he would send a pulse and ask me where I felt it. He wanted me to feel the pulse in my nostril. but I got to feel pulses to my molars, front teeth, lip, and palate too, oh joy.

Once in the right spot the needle was left in that spot and pulses were done many times.

Then he did the other side, which went a lot quicker. In all the double ablation took about 90 minutes from start to finish.

I was told that I would have swelling and tenderness in my cheeks and that it could take up to two weeks to feel the full effects.

Yes I am a little tender, but I am fore head pain free for the first time in seven years.

The doc did say that while this ganglion is mostly somatic,but that a branch of F2 feeds into it. He expects that the results will last for six to nine months.

Thought I’d share in case there are others that have a similar, bilateral type 2 neuropathy.
aloha
A smiling, hopeful, ice pack covered
Hoselip

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Hi, thanks so much for sharing your procedure with us.
How are you doing ?
I’m so glad you have found some respite from your continuos pain.
Wishing you well, keep in touch!
((Hugs)) Mimi

Thanks! I am doing really well thanks. The surgeon was able to pulse the F2 nerve on both sides and it seems as though my pain is WAY down, if not gone. Still have swelling in my cheeks and small bruises. So I am knocking on wood. I will keep updating as this may be a procedure that could help others with similar bilateral type 2 neuropathy or neuralgia. Whatever it is. Have a great day. horselip

What do you do in 6-9 months? How many times can you do this?

This sounds soooooo scary and painful!

Now get out there and do things on your bucket list that you have been held back from!!!

I am workin hard on that bucket list! In the last two days I have done more then I did in the previous six months. We are going to Geneva and London later in March and I hope to ski the alps and have a huge list of things that I want to do and see.

If the procedure holds I will have it redone in 6 mos. Supposedly each time it is done more of the nerve goes bye bye. That 90 minutes of pure hell has been worth the pain relief that I’ve had so far. Maybe there is something more permanent in the pipeline? Anyone know?

Thanku for sharing your story with us!! Your very brave I must say and I hope your pain never comes back!

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Hello, Horselip. I am so happy for you! Would you mind sharing the name of the person who did your procedure and where I might find him/her? Unfortunately, my RFA was botched. My pain was in the middle branch, but he left almost the entire left side of my face numb, while somehow managing to miss the area where the pain resides, still in full force. It denervated my eye… I could go on, but will spare you the details. I would be open to trying it again with another surgeon once these issues (hopefully) subside. Thank you and continued healing to you!

Hi there
I’m so sorry that you’ve had problems. :frowning:
No prob with sharing the info.
I worked with the Pain Management Center at Stanford Medical Center. Dr. Einer Ottestad
was fantastic and is VERY well versed with RFA’s.
Im at a point where I’m doing okaaay.
My facial pain is under better control, but I’m on meds still. No more stabbing/on fire pain, more of a dull ache, I underwent several left sided procedures and a few doubles. I think that the procedures definitely helped.
Good luck!
Horselip