I am considering this procedure on my right TN3 and TN2. I am most interested in the TN3. My bi-lateral occipital rhizotomies have helped with the TN2 bi-lateral. I am beginning to feel an increase in pain as the molecules in both TN2 and the ON reconnect. I will be having another Rhizotomy within the next two months. It would be great if this procedure works, as well as, the ON rhizotomy. I understand if the procedure works, I may have a large drop in pain from the TN3 for nine to eighteen months.
After having TN and ON pain for a decade, I learned one of the best things I can do is to manage my expectations. To manage your expectations you need to know all possible outcomes. I am interested in any comments, bad or good, experience or knowledge. Thanks, Tommy R
P.S. I also posted this on two other sites. I want any feedback that would help in my decision making.
Do you know which nerve/ganglion they are going to attack? I just ask because there are a few different areas where they can do an RFA for TN, so when you come across others who have had this procedure, please keep this in mind. Want to make sure you compare apples to apples, although we're all so different it's still hard to compare even when you know it's the same exact procedure.
Whatever you choose to do, I wish you luck. From what I've read, an RFA seems to be a really good choice.
My wife and I met with his resident several weeks ago and decided not to do the procedure. Last week I had my bi-monthly nerve blocks. My neurologist suggested re-thinking the choice and meeting with the surgeon. His suggestion is significant because my need for nerve blocks will decrease, thus lowering the significant amoung of highly profitable block payments. I will let you know. Tommy R.