Preliminary Diagnosis

The neurologist's office called me in this afternoon, and I saw my MRI. There are white spots in the center of my brain, and a few others around the edges. The neuro said it could be MS. and from the rash on my face said that I may very well have Lupus. He found a doctor who agreed to be my primary care doctor, and she'll be doing tests, or referring me to other specialists.

I have a spinal tap scheduled for Tuesday of next week (29th). I also have an appointment with the ENT (ear, nose, throat).

I had a TN episode in his office, and so, I've been diagnosed with that. The MRI didn't catch it because the table was shaking too much.

Rather than curl up into a ball and cry, I've decided I'm going to tackle this head on, whatever "this" turns out to be. I'm not afraid. Concerned, but not afraid. Not yet. Maybe because I don't know exactly what I've got.

I'm still trying to wrap my head around all of this. I have no symptoms of MS, or if I do, I have associated it with being in this wheelchair, and I've been in it since July of 2009, with no cartilage in my hips. I couldn't do a standing balance test if I tried, because I can't stand upright. Weebles wobble, and I fall down. I also hurt...all the time, so fatigue is nothing new.

I haven't investigated Lupus, so am going to be digging for answers there. More doctors, new doctors, and things I've never heard of before.

It's all a bit overwhelming, but that's going to get a short leash.

Today, I have trigeminal neuralgia. It doesn't have me.