Besides the pain (LOL) the doctor put me on the pill to try and regulate my estrogen as to stop break through pain. The pills have made me an even crazier person (as if that was possible). I go between crying to yelling. I figured it would all be worth it, but then at the end of the cycle, when I was supposed to skip my period, I started my period anyway, and I am just so depressed.
I quit school, I can't drive, being on the computer causes pain (I will pay for this posting later) and I had really believed that this would help. Oh.... and I have zits now too! LOL I am so depressed. What is the point anyway?
Listen, I’m always up for a little “whine” & cheese!
We all need pity parties !
It helps us vocalize our feelings and get it out until the next time!
I don’t know anything about the pill helping, but maybe it needs more time to work??
Maybe put a call into your doctors office with your concerns?
I completely understand ALL your feelings… It’s so difficult to deal with the physical pain and then try and handle all the emotional side effects too. But apparently we have too…
One moment at a time, be gentle with yourself.
I am trying very hard with myself too, it’s not easy.
I think it’s important that we validate our feelings, no sense beating ourselves up.
I keep trying to remind myself, " what if this wasn’t me going through this but a close family member or friend?" what would I say to them? What would I think?
It helps me to be a little more gentle with me.
I’ve been pretty much house bound due to vertigo, imbalance and TN. I can’t drive. I am very independent , was. I’ve gained 25lbs, and can’t do anything about it.
It’s been difficult, but I have no control of the physical stuff, and only minimal control of the emotional, so I try very hard, and sometimes I don’t. I pull the covers over my head, cry, scream whatever. It’s all ok.
Just know you’re not alone in this, better days, moments are around the corner…they have to be!
((( hugs )))
Mimi
I am so sorry you are having such a terrible time!! I am struggling quite a bit myself so I don't really have any wonderful advice but, I want to let you know that we are all here for you, we understand what you are going through. Keep fighting!! Don't give up!
Every day is different & new! I’m having a bad day myself but my hope is tommorow will be better! I really like Mimi’s advice! Just reading bout your bad day makes me know that im not the only one & Mimi has great points!! Thanks for sharing!
I agree. We all need/deserve a bit of a pity party once in a while but I try to set a time limit. I allow myself to feel sorry for myself, cry or whatever I need for five minutes. After that I need to move on. I find that the longer I stay upset about my position the worse I feel mentally and physically. For me it is important to continue doing as much as I can, even though I realize that those are the very things that can trigger an attack. I can have an attack sitting home feeling sorry for myself or I can go out for a run with my dogs, enjoy it and yes, probably have an attack afterwards. It is a choice I make but I would rather have some happy moments in my life then stay at home worried about having one.This is just me and I understand that everyone has diffence levels of pain and tolerance but I do find the pain is worse when I am depressed so I try to keep as positive as possible. Find something you enjoy and try and focus on what is good in your life. This does limit us but we don't let it take away everything.
Thanks so much everybody!
A walk with my dog sounds great, but with one exception I’ve been chair bound for days. Pillows hurt. I’ve been considering filing for ssdi so that maybe in 2 years I’ll qualify for medicare. All the political talk this year makes me fear that the healthcare I qualify for now will be gone too.
This has been 6 days of hell and I pray to stop bleeding soon
I'm so sorry you are going through so much pain. I know there's nothing me or anybody can say to make it go away but please know that there's so many people you don't even know rooting for you and knowing you can get through. When we feel like we reached our weakest point we are actually at our strongest. You made it this far and you will make it as far as you need to. With every new day comes a new step, one step closer to new hope, new progress, and new beginnings. Even if you can't see the sun through the clouds doesn't mean it's not behind there lurking and waiting for you. Hang in there, and feel free to send me a message if you ever need to talk, I know what it's like. And I know that the both of us and everyone in here can get through this. Big big hugs.
