I have been diagnosed with Type 2 TN by my neurologist. I have the facial pain (right side) that we all experience in some form or another (mine is often tingling on my chin or near my nose that hurts when I touch it or intense burning around my right eye, the socket, and my right cheekbone), but I also have a constant, non-shifting, one-sided headache that began a month before my TN symptoms and has never left me. It is on the same side of my head as my TN. I feel it from the time I wake up until the time I go to sleep...every single day. It is generally moderate in pain level, but often spikes to intense on its own or due to a TN episode. My neurologist has suggested that it could be Hemicrania Continua (though he is uncomfortable with that diagnosis) or a Chronic Daily Migraine. Am I alone in this or do others experience this as well? Oh, the headache is lessened by taking Indocin 50mg every eight hours. The headache intensifies dramatically within an hour of the 8 hour window if I forget to take Indocin (busy at work, napping at home, etc.). Additionally, my TN symptoms flare up as well if the same event occurs.
Please respond if you know about this phenomenon or experience yourself.
~Fred