I wonder if anyone can answer the question, if my husband who is 80 yr, has type 2 (TN2) would he also have to be experiencing some of the symptoms of type 1(TN1 to be diagnosed with TN)? Or can you still be suffering from Trigeminal Neuralgia with just type 2. Suffering extreme constant pain on the left side in, jaw and ear with a weeping eye. Jocie.
http://www.livingwithtn.org/page/info-12
Hi Jocie, many patients with Type2 (ATN) present only with type 2 and never experience type 1 shocks. I’ve included a link above from our face pain info pages.
http://www.umanitoba.ca/cranial_nerves/trigeminal_neuralgia/manuscript/types.html#atn
Also this link above from one of my favorite TN info sites.
I hope they are helpful.
((hugs)) Mimi
Much appreciate the link you sent, will take time to digest it all. Just had to pick my grandaughter up from school. Thanks again.
Good Day, Jocie! I do hope all is well within your home today. Just saw your message and my heart goes out to you. Living with TN is a daily challenge for us suffers but to be the love one of a TN patient and not knowing what to do or how to treat your love one can also be a suffering of your own. Did you look into the Groups link at the top of our own, "Living with TN" homepage? Step's Group has the answer I think you might be seeking? Here is the link, just click on it. I hope you find the answer and relief from pain for your dear husband. http://www.livingwithtn.org/group/typeortypeiiorbothwhatami
Blessings,
Kayron
<p>So, if you have constant pain you need to differentiate between constant pain associated with typical trigeminal neuralgia and constant pain associated with "persistent idiopathic facial pain (formerly called atypical facial pain.)" </p>
<p>The constant pain associated with typical trigeminal neuralgia is often triggered by speech, tongue/mouth movement and dies down when the you are still for a few minutes. If you had paroxysmal pain (shock-like) pain of "TN1" and developed constant pain later, you are more likely to have typical trigeminal neuralgia. If you have a paroxysmal flare up and the constant pain is present but subsides when the paroxysmal pain subsides then you have typical TN. If the constant pain responds well to tegretol and trileptal. If you have these symptoms, you are very likely to respond well to neurosurgical interventions of MVD, Gamma Knife or rhizotomy.</p>
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<p>On the other hand, what if you have constant pain that is persistent idiopathic facial pain is not triggered by movement of speech, eating, tongue, mouth and is not relieved by being still? What if being still often makes it worse? What if the pain is constant even if there is no flare ups of paroxysmal pain? What if the constant pain does not respond to tegretol or trileptal? Then the constant pain is unlikely to respond to neurosurgical procedures such as MVD, gamma knife and rhizotomy.</p>
<p>This is just one article in one journal, but I think it may help some of you and your physicians treating you.\</p>
<p>Has anyone had surgery and the results did not correspond with these preoperative symptoms?</p>
<p>Has anyone had surgery and the results did correspond with these preoperative symptoms?</p>
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Very important article concerning TN1 versus TN2 by Dr. Ronald Brisman entitled Typical versus Atypical Trigeminal Neuralgia and Other Factors that may Affect Results of Neurosurgical Treatment. World Neurosurgery February 22, 2012 which can be found at http://www.trigeminalneuralgia-ronaldbrismanmd.com/Typical-ATNPS.html
What I believe his findings are, is you have to differentiate your pain in the trigeminal nerve distribution into different categories. Its not just "TN1" and "TN2". You need to take a further accounting of your symptoms in order to figure out if you will respond to neurosurgical procedures of MVD, gamma knife or rhizotomy.
So, if you have constant pain you need to differentiate between constant pain associated with typical trigeminal neuralgia and constant pain associated with "persistent idiopathic facial pain (formerly called atypical facial pain.)"
The constant pain associated with typical trigeminal neuralgia is often triggered by speech, tongue/mouth movement and dies down when the you are still for a few minutes. If you had paroxysmal pain (shock-like) pain of "TN1" and developed constant pain later, you are more likely to have typical trigeminal neuralgia. If you have a paroxysmal flare up and the constant pain is present but subsides when the paroxysmal pain subsides then you have typical TN. If the constant pain responds well to tegretol and trileptal. If you have these symptoms, you are very likely to respond well to neurosurgical interventions of MVD, Gamma Knife or rhizotomy.
On the other hand, what if you have constant pain that is persistent idiopathic facial pain is not triggered by movement of speech, eating, tongue, mouth and is not relieved by being still? What if being still often makes it worse? What if the pain is constant even if there is no flare ups of paroxysmal pain? What if the constant pain does not respond to tegretol or trileptal? Then the constant pain is unlikely to respond to neurosurgical procedures such as MVD, gamma knife and rhizotomy.
This is just one article in one journal, but I think it may help some of you and your physicians treating you.\
Has anyone had surgery and the results did not correspond with these preoperative symptoms?
Has anyone had surgery and the results did correspond with these preoperative symptoms?
I agree with Mimi. Just wanted to say hi and give (((((((((hugs)))))))))) and hope your husband feels better soon!