Returned from Philadelphia with a few tweeks in my meds. Went with a more compassionate approach for myself and the physician. If there’s one thing I’ve learned here is that no one journey is the same. Those who had an MVD where an artery is the culprit generally have a more positive result. Unless, there are veins also involved. Those of us that have had Gammas and then MVD’s have different healing journeys. But we all need to just hold on. I keep forgetting that. And I know better. My anger keeps rising up and it only fuels the pain and slows my healing. The reality is that I’m not angry at all but frightened. Some days are just awful but they do get better. I read one of my posts and my words made me cringe. Anyone can get this disease, and for some of us will need to make peace with it. Thank you for all the kind words and well wishes. For those just out of surgery take it slow even when you want to pick it up a little. All in good time. Thanks KC should be ok for a bit.
Glad to hear you sounding so much better, Lou! We have all “been there.” You are right… fear usually is the basis of anger. It’s also one of the hardest things to deal with when you have TN. I’m 3 weeks post-MVD and had a couple very, very minor twinges yesterday. Instantly I felt a sick, intense panic rise up inside of me. I pray my emotional healing catches up to my physical healing soon! Hope the tweaked meds give you some relief… long-term relief. Peace be with you…