Does anyone know how to get access to information about clinical trials that may be available for new pain medications?
From either of these web sites click on the tabs to open clinicaltrials.gov then enter trigeminal neuralgia in the search box to see a listing of the 32 clinical trials in progress. Observe that several are completed with final comments and study results extended to 23 March 2015. Did you know that Principal Investigators cannot find sufficient numbers of TN patients to conduct their studies and often publish only single case studies at various medical conferences with titers that only a medical doctor could decipher.
If you know the name of a drug then type trigeminal neuralgia and the drug name in the search box. Even if you don't know a drug name then type in "drug" to get a listing.One successful drug that recently completed results is Sativex or cannabis or marijuana.
Another interesting fact is that TN is not listed as a rare disease by the National Institutes of Health rare disease studies. We patients should all sign up for clinical trials because NIH apparently has no idea that facepainhelp.com or livingwithtn.org web sites exist or that TN patients are available for research. Older TN clinical trials have often been cancelled because sufficient numbers of patients could not be found and many of the completed studies included only 11 to 32 patients. I have signed up because it is no cost to sign up – have you?
http://www.nih.gov/health/clinicaltrials/index.htm
NIH Clinical Research Trials and You
http://newsinhealth.nih.gov/issue/mar2015/feature1
Be a Partner in Clinical Research Help Others and Help Yourself