Hi all.So i have my prescription now.300mg twice a day.Been reading the side affects as you do,and am not really happy about taking the mad meds.I do drive daily ,and some distance too.It also says weight gain,which i dont need any more of that.The side effects are horrendous. Who has had these pills and what effects did you get and did they work.
I take this drug and very new to TN. I don't understand much about it yet. I take 3 a day, still trying to figure out the correct amount.. Now understand I do everything backward, but I have lost weight on the drug. I just am not hungry.
In fact I am making my self eat.
My pain is not under control, I am looking so forward to that day.
I found out to wait 3 hours before driving, also as long as I have something to hold onto tight I am ok, (sterling room works for me.) I hold my driving as little as possible. local only.
I know this did not help any, I am also new to writing on the Forum. They tell me it will get better, I am hanging onto that hope.
hi kevin.Well i am meant to take 2,but took the 1st one last night before bed,i thought that to be safer. what do you mean you do things backward.. I have a mild headache this morning,i wil give this pill a few days or so,cos i can normally tell with the anti epilepsy ones,if they are ok,none have been so far.This is a newish one so im told,one with the 'least' side effects 'apparently'. I take 75 mg nortriptyline too,those were my life saver,but i still get burning,achy gum,teeth pain. Thats where my pain is mostly. Wheres your pain . Im new to it too (one yr now) ,and i find this site a life saver
kevinjenny9310 said:
I take this drug and very new to TN. I don't understand much about it yet. I take 3 a day, still trying to figure out the correct amount.. Now understand I do everything backward, but I have lost weight on the drug. I just am not hungry.
In fact I am making my self eat.
My pain is not under control, I am looking so forward to that day.
I found out to wait 3 hours before driving, also as long as I have something to hold onto tight I am ok, (sterling room works for me.) I hold my driving as little as possible. local only.
I know this did not help any, I am also new to writing on the Forum. They tell me it will get better, I am hanging onto that hope.
When I say I do things backward, I mean, Antihistaminines keeps me awake, and to most it puts them to sleep.
Codeine keeps me awake, So pain killers is hit and miss with me.
I was Put on Oxcarbazepine just to try and get me to the Specialist, (I am still waiting on that one) and than Dr put me also on LAMOTRIGINE. I had a very very bad reaction. In ER. (that alone is a wonder story) I was broke out all over, they found also I had STEVENS-JOHNSON SYNDROME. Which is cause by one of the two Seizers meds. So I quite the most recent I was taking. That was the LAMOTRIGINE.
Wish U could understand this sickness more, So far the Doctors I have seem have little knowledge, They are trying but flying somewhat blind.
kevinjenny9310 said:
When I say I do things backward, I mean, Antihistaminines keeps me awake, and to most it puts them to sleep.
Codeine keeps me awake, So pain killers is hit and miss with me.
I was Put on Oxcarbazepine just to try and get me to the Specialist, (I am still waiting on that one) and than Dr put me also on LAMOTRIGINE. I had a very very bad reaction. In ER. (that alone is a wonder story) I was broke out all over, they found also I had STEVENS-JOHNSON SYNDROME. Which is cause by one of the two Seizers meds. So I quite the most recent I was taking. That was the LAMOTRIGINE.
Wish I could understand this sickness more, So far the Doctors I have seem have little knowledge, They are trying but flying somewhat blind.
I could drive on it…but could not keep my wits… Made me lose memory, and just felt dumb when i talked or typed. It took my pain away, no weight gain. While you are getting used to it
Phone your doctor and tell them to call you in some lidocaine mouthwash!
Keep on trackng symptoms, keep in touch with pharmacist, and find the lowest dose you van live with for now.
Learn as much as you can. If you need to switch meds,
Ask me for the link of our favorite meds!
hi kc. Ive been on them 2 days at 300 mg. i have had mild headache,slightly worse today,but dont seem to be any other issues.I cant say if its helps to be honest,as i still have burning gums. im not sure if the anti seizure pills work for that do they.
Kc Dancer Kc said:
I could drive on it.....but could not keep my wits... Made me lose memory, and just felt dumb when i talked or typed. It took my pain away, no weight gain. While you are getting used to it
Phone your doctor and tell them to call you in some lidocaine mouthwash!
Keep on trackng symptoms, keep in touch with pharmacist, and find the lowest dose you van live with for now.
Learn as much as you can. If you need to switch meds,
Ask me for the link of our favorite meds!
Have you tried lidocaine mouthwash before? Put it in search box here.
Yes I do have the have the mouth wash I guess it’s works some. Kind of hard to tell after having a bad spell if u know what I mean. Lol
I take this medicine and it can be rough on me I large doses. I take 600 in the am and 900 at night. Considering adding an afternoon dose as well. I have experienced weight gain, confusion and extreme fatigue. But it does seem to help better then others.
I also take tegretol but I am on tegretol ER
I do have memory issues but no weight gain.
This was the only med that did not aggravate my tinnitus.I take 200 mg 3 x daily
I had bad side effects,but the darn stuff helps with the pain.So choose your poison.LOL.Yes,i gained weight even though i could barely eat.My blood numbers went wacky.Low sodium which is crazy.Dizzy and half asleep all the time.Forget my own name(almost)lol.But,yea,i still took them and would again.Keep your dose as low as you can.It was about the only thing that helped for me,although each episode i took more and it helped less.