Hello All,
I am so so happy i have had no pain for 2months i cant belive it i have never been pain free for this long and im on no meds.
Sorry but i just wanted to share my luck with no pain hopefully it satys away i hope so many of you have no pain like me to have a brake,god bless you all.
Im thinking it may have somthing to do with my mind set and no STRESS im loveing my life and my job and im tryn to keep fit and healthy.
I wish you all a pain free day lots of love your way.
Mina xxxx
That is wonderful! The longest remission I’ve had in the last 6 years was 1 week. I have read that sometimes the pain stops and doesn’t return. I am hoping that is how it will be in your case. If there is an up side to having TN, it would be the joy we feel at being NORMAL! We don’t take our pain-free times for granted because they feel like a gift. Good luck!
Mina,
That is wonderful. I didn’t realize it had been that long. I sure hope it continues.
Liz
Congratulations!! Please tell me what you mean by being healthy to give me something to strive for. I’m do happy for you!! And yes, I know what works for one person may not work for another.
Hi Debbie,
I have cut out bread and most of all carbs i try to stay away from all triggers and i still get sharp jabs but thats it i get sharp pain in my ear then it goes so i am very blessed its like it has calmed down i cant belive it i keep thinking im going to get it reall bad when i get a flare up,i took myself off all meds i seemed to get more pain on meds.I feel free but i still fear the pain i use to have flare ups every 2nd week and it would last for a week most of the time i would end up in the hospital i was that bad i couldnt think i couldnt talk cause the wrong words would come out i think coz the pain would shock me ,i can only pray it never comes back thank u so much for ur support.
Mina xxxxDebbie said:
Congratulations!! Please tell me what you mean by being healthy to give me something to strive for. I’m do happy for you!! And yes, I know what works for one person may not work for another.
Hi Liz,
Yes nearly two months i think lol im so happy im over the moon i havent had a day off work and i have held my job down and loveing life.
Mina xxx
Liz K. said:
Mina,
That is wonderful. I didn’t realize it had been that long. I sure hope it continues.
Liz
Hi Suzanne,
I really feel for u 6 years and a week of no pain i would not cope at all u must be a strong women i look up to u for dealing with TN for so long,all you want when u have TN is to feel normal wake up and be able to do everything u want without thinking sumthing might set it off ,all the best wishers to being pain free if i could give u a day to feel normal i would, i feel bad i have been pain free and so many ppl are living everyday with TN pain with no letting up,lots of love ur way and i hope one day TN HAS A CURE THAT WORKS.
Mina xxx
Suzanne Marriott said:
That is wonderful! The longest remission I’ve had in the last 6 years was 1 week. I have read that sometimes the pain stops and doesn’t return. I am hoping that is how it will be in your case. If there is an up side to having TN, it would be the joy we feel at being NORMAL! We don’t take our pain-free times for granted because they feel like a gift. Good luck!
You should never feel bad or guilty about feeling good, that’s what we all want… for ourselves and each other! It gives the rest of us hope. I’m having MVD surgery in a couple of weeks, so I am keeping my fingers crossed that it will fix me. I’m scared about having surgery, my first major surgery so I don’t know what to expect.
I’m not really all that strong, just lucky that I can live as a semi-hermit out here on the ranch. Our nearest neighbor is a mile away, so I can pretty much avoid talking or being in a noisy environment. Public places jangle my nerves, sudden noises can hit me like an electric jolt. An hour at Chuck E Cheese would probably kill me! HA!
I’m kind of like one of those crazy old cat ladies, except I adopt goats instead of cats. Okay, I have a few cats too… and dogs… and horses… and chickens. I think having something else to focus on really helps me deal with the pain, especially something that is as fun as our barnyard circus!
Hi Suzanne,
Im happy u have somthing to keep ur mind off the pain wow u have alot of animals i have two dogs which are mine and my fiances life they are like our babys untill we have sum lol im from australia so we dont have chucky cheese but i have seen it on movies.I hope your MVD surg goes well and u are rid of this pain 4eva.Do u have tn on both sides i do but its weird coz i get warning pains on the rite but will get the bad pain on my left …??? weird but my rite side is so much worse then left somthings i feel like cuting my head open and fixing myself ppl just dont understand and doctors just dont care they cant see it so its not there.lots of luck for ur surg dont be worried it will all work out .
Mina x xxxSuzanne Marriott said:
You should never feel bad or guilty about feeling good, that’s what we all want… for ourselves and each other! It gives the rest of us hope. I’m having MVD surgery in a couple of weeks, so I am keeping my fingers crossed that it will fix me. I’m scared about having surgery, my first major surgery so I don’t know what to expect.
I’m not really all that strong, just lucky that I can live as a semi-hermit out here on the ranch. Our nearest neighbor is a mile away, so I can pretty much avoid talking or being in a noisy environment. Public places jangle my nerves, sudden noises can hit me like an electric jolt. An hour at Chuck E Cheese would probably kill me! HA!
I’m kind of like one of those crazy old cat ladies, except I adopt goats instead of cats. Okay, I have a few cats too… and dogs… and horses… and chickens. I think having something else to focus on really helps me deal with the pain, especially something that is as fun as our barnyard circus!
Mina; congrats on your pain freedom and forever may it last! Please, p-l-e-a-s-e never be ‘sorry’ to share your good fortune with us. Reduced stress and healthy living is a goal one should always strive for. I walk at least 4 miles each day, have a BMI of 23.77, blood sugar 74, choresterol 172 and a BP of 136/78. Stress is there, but I’m a ‘happy camper’. My ongoing maladies don’t get me down. My attitude is , as always, is gratitude! Thank you, bob
Thank God Mina!!! I’m so happy for you. It’s like having a new leash on life when you feel well. I’m so happy for you.
Can I come spend a few weeks at your place Suzanne? LOL
Hi All ,
Thank you all so much,i may have spoken to soon i woke up with my face a bit swollen and warning signs of a flare up im waiting for it to hit me…But on the bright side im not going to let it get me down like it has in the past,i know this flare up will be bad i have burning sharp pain in ear and a weird dull throb when i move my head im just waiting and fearing the bang in my face to start it all off.
Yes suzanne you are welcome to come to mine in australia lol.
I will keep you all updated lets hope this is all i get i will be happy with that they pain i am getting now i can cope.Lots of love and pain free days to you all.
Mina xxxx
Hey Mina,
I am so happy for you my friend, that you can feel the world now without the monster lurking over your shoulder! Enjoy yourself! Go hang out with your friends, smell those roses and do whatever makes you happy, because YOU deserve it!!
Never be sorry for feeling good! I pray that you continue to remain pain free Mina and that you continue to be able to enjoy the good life you have!
Hugs ~ Kerry xx
Hi Kerry,
I have pain… i spoke to soon im so upset it is back and this time it is really bad 
Minaxxx
Kerry said:
Hey Mina,
I am so happy for you my friend, that you can feel the world now without the monster lurking over your shoulder! Enjoy yourself! Go hang out with your friends, smell those roses and do whatever makes you happy, because YOU deserve it!!
Never be sorry for feeling good! I pray that you continue to remain pain free Mina and that you continue to be able to enjoy the good life you have!
Hugs ~ Kerry xx