News from neurologist today

Archive Blogs (Read Only)
1

Hi. I am Amy, and I have suffered from GPN for about 4 years now, and have been diagnosed for about 9 months. I have had a crazy month of pain, and after gabapentin and trileptal, my neurologist and I have decided it is time for the MVD. He has referred me to UCSD. I am excited and scared at the same time. Having my brain cut into is not my idea of a good time, but it sure beats going through this pain.

I do have a question about the pain, most of my attacks are not intermitent stabs of pain, but last for 12+ hours of constant pain. Does anybody else have this? This is the only symptom I have that does not match to the T.

Ok, I have more than one question... Has anybody that has had MVD have any advice for me? Does anybody know how long the recovery time is? Since I'm going out of state, I'm not sure when I'll be able to fly home.

Thank you for your warm welcome to the group. Praying that everyone has a pain free night!

Amy

2

yes my GPN tends to be for long periods of time or cycles and actually come at certain times. when the weather is bad like when the pressure drops they are very bad. mine can last for a day or sometimes a week. you are not alone!

3

I HAD THE OPERATION IN NOV. 2009. I WAS PAIN FREE FOR ABOUT 15 MONTHS. THEN THE PAIN CAME BACK BUT NOT SO I CAN’T STAND IT. GETTING A LITTLE WORSE EACH DAY BUT NOT BAD. THE OPERATION WAS NOT BAD AT ALL. (I WAS ASLEEP) THE RECOVERY WENT WELL. I HOPE YOU WILL FARE WELL. CHUCK

4

Hi Amy , yes my pain can go on for days , always have a dull sort of ear ache but i can just bend down or something and its like i can imagine being shot in the head , that severe stabbing pain going on for hours , you just cant exsplain it really .