Hello I am new here and would like advice or if anyone has had similar experience.
My pain started last may and like most people with TN initially thought it was a dental issue (it was ruled out and was diagnosed with TN).
What’s unique to my situation is that my pain attacks occur while I’m asleep and wakes me up in which the attacks usually occur anywhere from a 10 minutes episode to up to 7 hours.
The pain is felt deep within my ear and is burning and feels like a hot rod is repeatedly being stabbed in there.
I ended up having mvd surgery and was found to have a blood vessel fused to my trigeminal nerve along with vessels sitting atop my glossopharyngeal nerve.
I was told that the surgery was successful.
I had been pain free a month following surgery along with decreasing 75mg dose of lyrica weekly (currently down 300mg lyrica) leaving me on 800 of tegretol and 150 lyrica.
Out of the blue I had pain waking me up at night twice in a week.
I am wondering if it is still early to be completely healed at 5 weeks post up given that that they had to separate a vessel and the trigeminal nerve.
I of course am thinking the worst.
Any advice would be great!
Thank you