Hello Everyone,
I found this site via google and hope some kind members might help me rule in TN 2 or rule it out. A post by a member named Sue Richey (sorry Sue) popped up and it mentioned nerve pain in the eyes and migraines.
I have been having eye pain that I had always been associated with a dry eye condition I have had for a number of years.
I can't tell you how many opthamologists have looked at my eyes only to scratch their heads. Sure they are dry, they would say, but not that dry. They should not be causing you the kind of pain you describe. So let me get right to it, this is what I have been experiencing of late. First they itch, then they burn and then they ache-both of them, before after an hour or two the pain goes into one eye and I get a migraine like pain which is relieved somewhat by Imitrex. My top teeth ache too. Kind of a dull ache. Its like the whole center of my face, but especially my eyes burn deeply after awhile. Prior to this I did go to an ENT to check out the tooth pain. He said it was not a sinus problem and might be neurological.
I decided I needed out of the state help (I'm in AZ) so I went to Cedars Sinai and saw their headache guy and a neuro-opthamologist.
The headache guy I saw is Steven Graff-Radford. He thought the eye pain was some kind of migraine/cluster type daily persistant HA.
So he put me on Topamax which gave me more frequent HA's than before and dried my eyes out big time. I am now on Indomethacin. It only been a few days on this drug.
I should mention that the next day at Cedars I saw the neuro opthamologist.
He said I had chronic blepharitis and corneal abrasions. He put in pungtal plugs and told me to go back to the hotel and put in GenTeal gel and see him in the morning. He then gave me a prescription drop for the bleph called Tobradex. Its been about 5 weeks and my eyes seem a bit better but there is always this underlying discomfort and pain. Not horrible pain, but the kind that just grinds you down after awhile so you want to scream. I do not get jabs as some describe, but after taking the Topamax if I cough or sneeze or do any kind of valsalva maneuver, I get a sharp pain from my eye to behind my right ear, which persists after discontinuing the Topamax.
Does what I am describing sound at all like TN Type 2?
Thanks,
DE