Nikki, I just saw this post, so sorry I hadnt responded, when I went to the ENTand asked about Eagles syndrome he shrugged that off completely, and this is our areas top ENT! I was very frustrated when I left there…I asked him if he has ever treated anyone with symptoms similar to mine and he said never, so I guess my answer is to move on from that office. I am tempted to go back to medical school just to be able to research this more for all of us, so frustrating. 
Dearest Laura and Amanda, thank you both for sharing your stories with me…you can never type too much, it’s the only info out there for us all to compare notes. This has been a rough week for me…intense pain, always constant in every area but each day is a new rollercoaster with one section of my neck, or jaw or ear more excruciating than the other dull pain areas. I was so happy the third week I was on the new nortryptilene because for about a week the pain was so much less, then wham it comes back with such a vengeance. Today I can barely open my mouth to eat or smile or put lipstick on because it starts to throb worse. Last week I had a neck X-ray at the request of my primary doc, that didn’t accomplish anything but radiate my soft tissues and cause damage probably. He also gave me Norco to try, that didn’t even come close to dulling the pain, which made me laugh cause I felt so loopy from it the three times I tried it, I was high but still in pain, blah. @laura, please let us know what happens to you Tuesday, good luck my friend!!
Oh God Jill my heart goes out to you, I've had days like that where I can barely open my mouth and the slightest movement is sheer agony. Don't know what to suggest to you in relation to the pain if Norco is not working - I've sometimes found that Nurofen Plus (the one with the codeine) works better than any prescription pain killers (and sends me less loopy!)! What I definitely find helpful though is when I'm having a bad attack is the sleeping pills I asked my GP to prescribe, when I'm having a bad one I take 2 and can be out for about 12 hours, it's the only time I don't feel the pain. I presume your putting on lipstick means you're still trying to go into work - not that I'm telling you what to do or anything, but you've got to put your health first and if you're in that much pain perhaps consider not going in. I hope you've lots of support around you when you're like this for you, and your kiddies.
Thinking of you, let us know if the pain recedes a bit?
Amanda x
Hello! Please see my post under MVD surgery by tayor. I am too tired to rewrite it. …and of note also. I am an RN in a hospital. Over the years i have had such difficult times managing. From spitting in sinks because i cant swallow to not being able to answer phones as talking will start a spasm. I have suffered through horrible pain and spasms in the bathrooms, in front of patients and co workers. Somehow i have managed at work with very few call ins over 12 years. Currently though i am out of work for two weeks now and will not return until 6 weeks after surgery. Thanks to FMLA and my having tons of sick time.
Did you red my reply to Nancy JO?
When they finally thought that my debilitating pain could be GPN ,they ordered a MRI WITH contrast to rule out MS and tumors.When that can be ruled out ,then the diagnosis is GPN.