i am now an atypical face pain patient [ meaning who knows ]! but in my case other areas of my body are producing nerve type symptoms as well! but my face outside and inside my mouth are burning,stinging,pain,shots of pain on my face and nose,burning mouth, pressure around and in my eyes,sensitive teeth etc.are are all nerve related! like all three areas of the trigeminal nerve have become affected by whats going on. these face symptoms just started for me about a month ago.
neuroligists: let me say that all doctors do not graduate at the top of their class. that being said is one better than another? [absolutely] some specialize in neuro-muscular diseases.some orofacial diseases etc.but they have all been trained in neurology.some may not be up to date on certain types of situations though they should be] but they all should know essentially the same things. the neurologist i just saw has absolutely know idea whats causing my problems! she actually told me to get another opinion from another neurologist ! ive had numerous tests and bloodwork for some things and nothing was found. no mri to this point and it wasnt even considered! i did have one a year ago but nothing was found then . but facial problems just started! enough about me. in instances where people have TN1 a mri can be useful in determining if something is pressuring the trigeminal nerve. ok but if one neurologist doesnt know whats the cause of his/her problem will another? well in my mind all tests should be run before determining any diagnosis to rule everything out that they have been taught! if then nothing is found i dont believe it matters what neorologist you end up seeing! unless you are not being treated for the problem with the medications that are available for the nerve problems then i can see moving from one to another! but in my case i dont believe the neurologist will be treating me in any way ! she did prescribe [carbamazepine] [im already on neurontin] i will be going to a pain management doctor! in most cases we are ALL [or should be] being treated with the same combination of meds that are out there in some way shape or form! antidepressants,neurontin,etc! so if no cause is found and you are being treated for the nerve pain and everything associated with it what does it matter what neuroligist you see! unless its something that a procedure may help you theres absolutely nothing more that can be done!!! accept trying different combinations,dosages of meds. in essence NEUROLIGISTS dont know ANYTHING! for the most part we are being treated with medications that were not initially intended for what we are using them for!
ive been around and have seen many ,many doctors over the years including many at a top hospital in my area.this is what i have been told by many of them! neurology and neurologists are still back in the STONE AGES! they DO NOT know how to diagnose or treat neurological problems! they try to treat the symptoms which is a hit and miss because all people do not respond to meds in the same way ! it can take 5+ years to get a diagnosis of any kind regarding many nerve type diseases! a process of elimination . and even then when they do get the diagnosis they do not know how to treat the patient anyways!! rheumatology can be the exact same way. years before they can make a diagnosis.bloodwork could be normal your entire life but you eventually develop something that they can see! there are no cures for neurological diseases and the treatments for them are somewhat limited !
as far as i know the human nervous system [the brain etc.] and all its billions of components have yet to mapped out ! so theres no way of knowing what could be the cause of my problem, your problem, and millions of other peoples problems without first knowing THE NERVOUS SYSTEM! and again unless its somethinmg that can be pin pointed and a procedure of a kind may help you we are left with the meds! even if say something happened to you during a procedure and nothing can be done about it surgical wise you are left with the meds!!! and just hoping you can find relief in that way! i have also been told that neurology is an under appreciated form a medicine! i personally find no appreciation in a medicine that basically HAS NO MEDICINE!!
technological advances: lol we need them. but we are NOT technologically advanced! sure some of it has helped a lot of people !finding cancer in its early stage or spotting something that may be helped surgically! going into space and beyond! but me personally it has not helped ! im sure some here have been helped or hope to be helped by it ! [ I SURE HOPE IT DOES ] but for the most part so far it really hasnt helped the majority! there have been no cures FOR ANYTHING that im aware of in many yrs! let me finish by saying i believe we were born 50,000 years to early because we are in the infancy in all the medical fields that are out there! and unfortunately for us we are paying the price!!