Hello all, hope its a relatively pain free day for you
I am seeing a neurologist next Wednesday fora follow up about my excruciating facial pain. I was diagnosed last time with something like 'atypical facial pain syndrome with nuragic components' since the pain was a little more vague last time. More just a constant burning sensation on both sides which gradually came on each day. Was advised to up Gabapentin and it would go away eventually.
Now I am pretty sure it is TN due to having severe episodes of sudden shock like pain accompanied by muscle spasms (whole face literally shakes sometimes), along with that aforementioned burning pain.
I am writing a plan of what I want to say and descriptions of the symptoms etc, since being on such large doses of meds my brain is rather foggy and I tend to get in there, talk too quickly and forget to mention things. Have also got a video on my phone of a rather bad attack which clearly shows the facial tremors.
So what kind of things should I say? Any further tips on convincing them to take this possibility seriously?
