I am so nervous about my second neurosurgeon consultation tomorrow. Could you tell by my title :). My Neurosurgeon put me up to 300mg 2x a day of tegretol in addition to my 10mg 3x a day of baclofen and 600 mg 3x a day of gabapentin. He said if the tegretol works I am a candidate for surgery. Well I can't tell if it worked. Before the meds I wanted to rip off my nose all day everyday. Now I only want to rip it off part of the day some days. And I still find myself having pain flare-ups. I don't know what that means. I don't know if I am nervous for him to say I AM eligible or I AM NOT. I feel so sick to my stomach over this. And then on top of it I have been getting flashes of pain on the OTHER side. Whaaaaat? Why???
In the meantime I keep getting flashes of light in my right eye. The ophthamologist I saw said my eye looked great and it must be some sort of "silent" migraine Aura. I am prone to migraines. I am just confused because it is only in one eye, and not both like a normal migraine Aura. Oh bugger. I hate being so nervous. I am close to tears, and sometimes past that.
I am so nervous I find myself subconsiously contracting and releasing my leg muscles. They are starting to hurt. Anxiety is so ARG. I just want my husband to come home from work already. 9 hrs to go. Blah.
How are you doing? Is there someone that can go to the appointment with you? I also get the eye flashes. My eye doctor thought they could be due to eye strain. Who knows?? I wish you the very best.
Hi! Thanks for the comment and sorry for the delayed response. I am hurting a lot lately (as we all are). Well the Neurosurgeon says I am only a candidate for Gamma Knife, but he is concerned that although I have some T1 pain, I have a lot of T2 pain. He says the Gamma Knife will not provide me relieve from the T2 pain. He was really compassionate and gave me a lot of his time. He told me I could wait on the GK or go ahead with it, depending on how urgently I needed pain relief. He was concerned though that because I am no longer displaying classic TN signs there isn't a clear cut surgical option for me. Fortunately my husband was there with me so he was able to do his own interpretation of the meeting as well. My husband seems to think my Neurosurgeon was really trying to say I have no real good surgical option at this point. I think he is right. But I also would like a second opinion. I am also not convinced I don't have a lot of T1 pain. I don't know. I just want relief. Don't we all! Thanks for reading :D.