MVD surgery on the 18th SCARED

I am really getting nervous now. The day is this Fri and each day I am getting more and more anxious. I am having problems navigating this site as I am new to it.

I am so so hoping to get off the Tegretol. The side affects are terrible. It does seem to curb the pain a little. But is playing havoc with me. All kinds of problems. I just want off this med. I wonder how long after the surgery will they say it is ok to start weaning off it.

I am trying to set up a table near me. Any suggestions on what I need near me> I will not have anyone here w me after the 3rd day. I have no other family and my daughter will have to get bk to work. I have had other surgeries and I am not afraid of that. I am afraid I will wake up and find that it hasn't worked or am in worse pain than ever.

What seems to trigger your attacks? I really can't tell. They just happen. How long? Can't tell that either. But the side affects of the Tegretol are awful. Also have bad bad dreams. Very vivid and out of this world. Any ideas or suggestions?? Worried

Hi firstly good luck for Friday & I hope all goes well for you ! When your not in so much pain they will start to gradually wean you off meds. I tried so many meds & the only one which didn’t give me nasty side affects is Gabapentin I’m still on them 12 years later my safety blanket lol !
On your table I would say drinks I even had a flask of coffee ! Grapes,bananas & sandwich ! I had a pile of mags also not that I read much I slept alot ! The best part is when they say you can wash your hair !
Once again all the best for Friday x

Tegretol does have side effects, worse in some people than others. Trileptal is a reasonable alternative medication that has fewer side effects in a lot of patients. It was created as a "tailored" version of Tegretol. Suggest you talk with your doctors about being weaned off Tegretol and onto Trileptal if you continue to need meds after surgery. Some patients do.

Regards, Red

I was already on Trileptal. Changed to Tegretol. I think the Teg is worse. I cant even get in touch w the Drs much less get them to gv me something else. I have asked and asked for a sleeping aid. I can't sleep more than 3to 5 hrs at a time. I feel exhausted, in pain, and tired of Drs and their bs. I am also on amitriptyline (35 mg) and Baclofen. And Tramadol. NOne worked so I have stopped them myself. I feel I was overmedicated. Now I feel I need something more. Between a rock and a hard place and feel I am being left out as far as communication w Drs.They are all the same.

I just dont' know anymore.

Thanks for your reply Red



Glynis Anderson said:

Hi firstly good luck for Friday & I hope all goes well for you ! When your not in so much pain they will start to gradually wean you off meds. I tried so many meds & the only one which didn't give me nasty side affects is Gabapentin I'm still on them 12 years later my safety blanket lol !
On your table I would say drinks I even had a flask of coffee ! Grapes,bananas & sandwich ! I had a pile of mags also not that I read much I slept alot ! The best part is when they say you can wash your hair !
Once again all the best for Friday x

Thank you. I am not so sure about this. Can't get any help tho thru the Drs so I guess I will go on w it. Hope it is the right thing to do. Thanks again.