I need more people in my life who really get it. People who I can talk to and share with. People who aren't going to judge me for my "whining and complaining." Thing is, I am way more active on Facebook than I am here. So I was wondering if anyone here would be interested in being Facebook friends (sounds kind of dorky...but I am desperate for friends who don't think I am making this up or whatever.) Well anyway, feel free to look me up and add me: Tiffany Neville
tiffany,
Hello...I was diagnosed with Atypical Odontalgia..All my pain is in my bottom canine tooth and gums..I have been to so many dentists who all xray it and say everything looks good..One dentist even laughed at me when I said I had face pain...I try to talk to my family about it but they just say "it'll be okay.." Just get the tooth pulled"...My husband is also tired of hearing about how my face hurts..So I understand when you say you need someone to talk to who doesnt think you're making it up, whining, or complaining...I'm not on face book but I am on here..If you want to text I can give you my number....there are alot of people on here who know exactly what you are going through...
Hi Tiffany
I'm sending you a friend request. No one on here would ever judge you for whining and complaining! I've had atypical TN since March 2012 and living with this type of pain is physically and emotionally draining. I totally get what you're going through. I'm not on Facebook but feel free to message me on here anytime :-)
No one can truly understand this pain unless they have lived with it. That is what we are all here for: to listen and to learn from one another! Whine and complain any time you want. I sent you a friend request on fb too!
hi
I am on facebook too. you can send me a request over there. The people here will not judge you and you are always welcome here. I agree that no one knows your pain until they have been there that is why this group is so great. WE have ALL been there and we all understand and to us you are NOT whining. So welcome aboard.
Jeritta
Tiffany and others, has anyone else experienced the absence of friends and acquaintances during all these medical issues? I was diagnosed with TN on my right side 4-5 years ago and had my first MVD July 2014. I was diagnosed in January 2015 with bilateral TN. Since the MVD on my right side I've slowly lost people who I thought were friends and people who were just acquaintances. I am not one who whines about what's going on with me medically and keep things pretty quiet with everyone except my one best friend, sister, husband, and kids. No one else knows what I'm going through. I don't attend many functions anymore since I'm constantly in pain or just don't feel well enough to venture out and have a good time. I have previously forced myself to go out but felt I was a downer because I wasn't into being around 'fun' at the time. I do believe this has led to my loneliness and loss of friends/acquaintances. Has anyone else experienced this? Tiffany, I attached my question to your thread since I didn't see anything else on friendship.
Jeanie
Hi Tiffany,
I have atypical trigeminal neuralgia. I have felt whinny before, and was literally told to stop complaining once. I was having the worst pain of my life at the time. So I get it. I also use Facebook every day for chatting and keeping up with friends. You're welcome to add me. Or I can send you a request. Just tell me who to look for.
Message me here for details.