My neurologist passed away on Friday, HELP!

General General TN & GPN (Old Site)
1

I am so lost now! I had a wonderful neurologist that I haVe been seeing since 2008 when my TN started. He has always been there for me, listened to every word, was very sympathetic, and I could always be me and was very comfortable around him. Dr. Marable (my neurologist) passed away on Friday in his office of a heart attack. He had been fighting heart disease for years. I have known him for 20 years as he came to my brothers clinic once a week for many, many years, so he was like part of our family. I am so sad for his family and friends. He was a wonderful man and doctor. He spent so much time with all his patients.

I don’t want this to be about me at all, but I don’t know what to do at this point. How will I every find a doctor that cares about me like he did?? How will I every find a doctor that listened to me like he did? I have read so many post here of so many of you that have had such bad experiences with finding a neurologist. It scares me so bad. It is very hard for me to open up about my condition and feel that comfort. I am not a complainer and suffer in silence so much.

Does anyone know of a good neurologist in Arlington or Ft. Worth, TX that has the knowledge of TN and really listens to us. I am so scared to start over so I would really appreciate any recommendations that you might have. I have had 2 failed MVD’s and 2 cyberknife treatments. I have TN1 & TN2. The left side of my face in totally numb with awful burning and pain is a brief description of me!!!

Again, thank you so much in advance of recommendations that you may have and I hope you all are having a pain free day!!
Donna

2

I'm very sorry for your loss! I understand how scary it is to look for a new neuro that will understand this disease. I had to move to another state and leave my neuro. I read everything online about all the doctors I could. There is also a section here that has a list of tried and true docs. I found mine there and couldn't be happier. Good luck to you, and again sorry for your loss.

3

Thank you so much for your response. I greatly appreciate it! He will be greatly missed!!

4

I understand the loss of a trusted doctor. My neuro closed his practise last winter. I felt abandoned and angry but soon realised that it really was not all about me. It is so hard not to panic I am sure. In Canada we do not need to worry about paying for our medical care. The down side is that we often have very long waits to see specialists initially. Stay strong and be of good courage. Praying you find another neuro who you feel comfortable with and can trust really soon. Till then I pray you stay pain free and have enough meds. Hugs

5

So sorry! Did he have other partners in his practice that could possibly go through your records and start treating you?

6

tiger4nikki,
Unfortunately not. That would make it much easier!!!

7

Not Arlington or Ft Worth, but I have recently started seeing Dr Joseph Vaughn in Dallas. He's with UT Southwestern, their Headache and Facial Pain Dept. My husband and I were both very impressed with his knowledge. I hope you find the help you need!! So sorry for your loss!!

Jessica